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Fighting to Care: Children, Cancer, and Agency in a Pediatric Hospital in Argentina: Medical Anthropology

Autor Rafael Wainer Cuvânt înainte de Lenore Manderson
en Limba Engleză Paperback – 9 feb 2027 – vârsta ani
Fighting to Care explores the lived experiences of children with pediatric blood cancer in Argentina, centering the struggles to care from the moment a child is labelled as experiencing "strangeness in the blood.” The book focuses on the notion of "permeable bodies" to understand children’s corporeal and subjective dynamic experience of cancer treatment and interpersonal care. Despite their vulnerability, throughout the course of demanding treatment, children display significant agency, actively navigating their medical journeys through various forms of communication and action. Fighting to Care also highlights the collective forms of care and the personal and interpersonal pain experienced by children, their families, and healthcare professionals in contexts of urgency and against health bureaucracies. In Argentina, caregiving, that is, fighting to care, is deeply intertwined with fighting for health rights within a public healthcare system that, while historically universal and free, is complex and impacted by recurring economic crises and social inequalities.
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Specificații

ISBN-13: 9781978842885
ISBN-10: 1978842880
Pagini: 220
Ilustrații: 2 tables
Dimensiuni: 152 x 229 mm
Greutate: 0.45 kg
Editura: Rutgers University Press
Colecția Rutgers University Press
Seria Medical Anthropology


Notă biografică

RAFAEL WAINER is a medical anthropologist, sessional lecturer at the University of British Columbia, and health researcher specialized in pediatric care based in Vancouver, Canada.

Cuprins

List of Tables
Foreword
Introduction: “There is something strange in your blood”
1 State, Rights, and Agency
2 Biomedical Interventions
3 Therapeutic Relatedness
4 Pain: Relationality, Meaning, and Affect
5 Humor and Agency
Conclusion: Fighting to Care
Acknowledgements
Notes
References
Glossary and acronyms
 

Descriere

Fighting to Care examines the experiences of Argentine children with blood cancer at a pediatric hospital emphasizing children’s agency despite the normalization of painful treatments that transform children into “permeable bodies.” The book demonstrates how children, caregivers, and healthcare professionals negotiate agency and humor while navigating invasive therapeutic paths. It highlights collective caregiving in the context of urgent and biosocial care. It explores how bodily and emotional experiences are shaped within a strained public healthcare system marked by inequality and crisis. “.”