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Elijah's Cup

Autor Valerie Paradiz
en Limba Engleză Paperback – 24 iun 2007
Faced with her two-year-old toddler's precipitous bout with epilepsy and his puzzling behaviors, Valerie Paradiz took a bold and unusual path, coming to terms with and ultimately embracing the strange beauty of her son Elijah's special neurological disorder, which was diagnosed as Asperger's syndrome, a form of autism.In Elijah's Cup, Paradiz tells the powerful story of her family's struggle with her son's disease, one characterized by social awkwardness, literal-mindedness, and a fixation with particular subjects and interests. Like attention deficit disorder (ADD), dyslexia, depression, and obsessive-compulsive disorder, Asperger's has exploded in diagnosis in the last decade, reconfiguring the known incidence of autism in the population with estimates as high as one in fifty people.
Ever since autism was "discovered" by researchers in the 1940s, the disability has been under the strict purview of professionals in medicine, psychiatry, and education. Like the deaf community, autistics themselves have had little voice in expressing their real experience and needs. They were framed as too "sick" to be conscious of their own internal lives, too "mentally ill" to possess an identity. All this has changed.
Today there is a blossoming movement of autistic self-advocacy groups and alliances that pose challenging questions to the medical status quo. A fascinating, independent expression of another way of life, full of quirkiness, hardship, and humor, has emerged. Elijah's Cup is a provocative and pioneering book that pushes the envelope of what we know about autism. Were Andy Warhol, Albert Einstein, and the comedian Andy Kaufman, whom we usually think of as brilliant eccentrics, autistic? Can these figures serve as role models to this community?
Elijah's Cup offers a refreshing take on mental disability from the perspective of civil rights, history, and the arts. From encounters with the founders of the first civil rights organizations for autistics, who guide Paradiz and her son toward a sense of community and self-respect, and with visual artists, who share with Elijah their special ability to "think in pictures," Elijah reaches extraordinary heights in his sociability and emotional well-being.
In this utterly absorbing and inspiring narrative, Paradiz also reveals her own shadow syndrome, which afflicts many family members of autistics. She is a "cousin," a genetic link to her son's autism. Standing as she does on this cultural borderline, Paradiz is a sensitive translator between two worlds, revealing a groundbreaking insider's view of the beauty of minds hidden in the shadows of autism.
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Specificații

ISBN-13: 9781416567769
ISBN-10: 1416567763
Pagini: 256
Dimensiuni: 140 x 216 x 15 mm
Greutate: 0.27 kg
Editura: Free Press

Cuprins

Contents

Preface

CHAPTER 1 Elijah's Cup

CHAPTER 2 The Gift of Loss

CHAPTER 3 Perfect Strangers

CHAPTER 4 The Coincidence of Sharron Loree

CHAPTER 5 Nietzsche in the Bathtub

CHAPTER 6 My Father Was a Yakker

CHAPTER 7 Echolalia Fun Fun Fun

CHAPTER 8 Balloon Days

CHAPTER 9 Cartoons Don't Get Hurt

CHAPTER 10 Life Under Glass

CHAPTER 11 Playground Comedian

CHAPTER 12 Cracking Code

Web Sites by and for Autistic People and for Autistic Advocacy

Notes

Acknowledgments

Index

Notă biografică

Valerie Paradiz

Descriere

Descriere de la o altă ediție sau format:
This provocative and pioneering book is both a refreshing exploration of the history of autism spectrum disorders (ASDs) and a powerful story of the author's own struggle with her son Elijah's Asperger's Syndrome.

From her first inklings of Elijah's difference to her discovery of a whole spectrum of another way of life that includes everything from civil rights organizations for autistics to Asperger artists, Valerie Paradiz describes how she decided to cross what she calls 'cultural boundaries' to overcome her fears about her son's condition. Her inspiring narrative offers compelling insights into daily life with Elijah's Asperger's syndrome and her own 'shadow syndrome', which affects many family members of autistics. It is also a celebration of the idiosyncratic beauty of the Asperger mind and the sense of mutual support and self-respect in the ASD community.

This revised edition includes a contribution from Elijah and a new chapter that brings the story up-to-date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years of school, and the author's dawning recognition of her own Asperger's Syndrome leads to major life changes.

Elijah's Cup offers moving and insightful observations as well as factual information for parents and anyone working with people with ASDs.

Recenzii

This is far more than just a personal account and makes fascinating reading about how individual lives are affected profoundly by autism in different ways.
Elijah's cup is a must-read for anyone interested in exploring the fascinating world of high-functioning autism
Praise for the hardback edition:

'Valerie Paradiz has written a moving and eloquent chronicle of the diagnosis of her son, Elijah, with Asperger's syndrome and their journey together into the world of high-functioning autism. Her book is an important addition to the literature of autism, full of beautifully observed moments.'

Sixty years ago, my father, the Austrian pediatrician Hans Asperger revealed the appealing and often overlooked qualities of these unusual children. He also showed how we even find some resonance of their difficult traits within ourselves. Now it's time for us to hear more directly the voice of autistic people and that of their parents. Valerie Paradiz has given us a precious gift of a book, full of her own experiences with her son.
Valerie Paradiz has written an honest, artistic and very human account of the impact of this exceptional and controversial social-political movement on her life and that of her colourful son, Elijah. She captures how this sometimes mind-blowing social adventure in a world rarely visited by most people expanded their lives and helped shape a different place of belonging in the world.
This inspiring narrative by Valerie Paradiz offers compelling insights into daily life with Elijah's Asperger Syndrome and her own 'shadow syndrome' which affects many family members of autistics. This revised edition includes a contribution from Elijah and a new chapter brings the story up to date: the author successfully sets up a specialist educational unit for Asperger pupils, Elijah experiences his first two years of school and the author's dawning recognition of her own Asperger Syndrome leads to major life changes.