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Understanding and Using Health Experiences: Improving patient care de Sue Ziebland

Understanding and Using Health Experiences: Improving patient care

Editat de Sue Ziebland, Angela Coulter, Joseph D. Calabrese, Louise Locock
en Limba Engleză Paperback – 4 apr 2013

Actualizarea constantă a ghidurilor de management clinic și administrativ impune o tranziție de la modelul paternalist către unul centrat pe experiența subiectivă a beneficiarului. Reținem că recomandările recente pun un accent major pe integrarea dovezilor calitative în procesul de luptă împotriva ineficienței sistemice, transformând „vocea pacientului” dintr-un element auxiliar într-un indicator de performanță clinică. În acest volum publicat de Oxford University Press, editori precum Sue Ziebland și Angela Coulter analizează riguros cum pot fi transformate relatările personale în date acționabile.

Notăm cu interes structura pragmatică a lucrării, care trece dincolo de simpla colectare a feedback-ului. Autorii explorează metodologii diverse, de la grupuri de focalizare și sondaje tradiționale până la analiza informațiilor de pe internet, evaluând critic validitatea fiecărei metode în contextul îmbunătățirii îngrijirii. Acolo unde Developing a Narrative Approach to Healthcare Research de Viv Martin acoperă în profunzime abordările reflexive și bazate pe consiliere, acest volum aprofundează mecanismele de aplicare a cercetării în politicile publice și managementul serviciilor de sănătate. Merită menționat că, spre deosebire de Researching Health Care 'Consumers' de Jennifer Burr, care se axează pe reformele NHS și conceptul de „consumator”, lucrarea de față adoptă o perspectivă mai largă, interdisciplinară, potrivită atât pentru mediul academic, cât și pentru cel clinic. Ritmul expunerii este unul clinic, orientat spre dovezi, oferind un cadru solid pentru oricine dorește să înțeleagă nu doar ce simte pacientul, ci cum pot aceste date să fundamenteze o schimbare reală în protocoalele de îngrijire.

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Specificații

ISBN-13: 9780199665372
ISBN-10: 0199665370
Pagini: 180
Dimensiuni: 179 x 234 x 11 mm
Greutate: 0.3 kg
Editura: Oxford University Press
Colecția OUP Oxford
Locul publicării:Oxford, United Kingdom

De ce să citești această carte

Această lucrare este esențială pentru profesioniștii din sănătate care doresc să fundamenteze îmbunătățirea serviciilor pe date concrete, nu pe intuiție. Cititorul câștigă o înțelegere clară a metodologiilor de cercetare calitativă și cantitativă aplicate experienței pacientului. Este un instrument valoros pentru manageri și cercetători, oferind argumentele necesare pentru a transforma feedback-ul pacientului într-o resursă strategică de optimizare a îngrijirii medicale.

Despre autor

Volumul este coordonat de o echipă de experți de renume, printre care Sue Ziebland, profesor de cercetare în domeniul sănătății la Universitatea Oxford, și Angela Coulter, specialistă recunoscută internațional în politici de sănătate și participarea pacienților. Contribuțiile lor reflectă o vastă experiență în cadrul Oxford University Press și în colaborări cu instituții precum NHS. Aceștia îmbină rigoarea academică a științelor sociale cu aplicabilitatea practică în sistemele medicale, fiind pionieri în utilizarea experiențelor pacienților pentru a influența deciziile de politică sanitară și practicile clinice la nivel global.

Descriere

Improving patient experience is a global priority for health policy-makers and care providers. The need to look at healthcare delivery through the eyes of patients is widely accepted, but how should it be done? What use can be made of this information, and what evidence is there that such exercises lead to better care?Understanding and Using Health Experiences: Improving patient care examines a broad range of different sources and techniques for gathering and analyzing health experiences. Providing an accessible and pragmatic overview of the diversity and richness of research in the field this book explores the strengths and limitations of different approaches, and assesses what each method can contribute to improving people's experience of illness, and the way that health services are delivered.The book looks at topics such as using focus groups to understand experiences of health and illness, patient surveys, and the internet as a source of information on people's experience. Using clear and engaging examples throughout, the book is accessibly written by experts in social science, health services, and health policy, and will be valuable to postgraduate students, healthcare practitioners, and individuals working in health and social policy, public sector management, and research.

Recenzii

This book provides a whistle-stop tour of qualitative approaches towards capturing patient healthcare experiences. It flows logically from an introduction to ethnographic, interview and survey techniques to discussing practice issues including pharmacovigilance (adverse experiences and issues associated with drugs, their prescription and use) and patient reported outcome measures.
There are many research books that incorporate patient voices, but there are none that only address the patient experience. This book is not meant to teach the research method, like traditional research books, but rather uniquely ties the patient stories/experiences to the application of them to change healthcare delivery.
Anybody who works in the NHS and is interested in how they can improve the care they provide for their patients, should read this book. It is also essential reading for anybody planning a project in the NHS either as part of their work or as part of an academic course, as an invaluable source of techniques to consider when planning their study.

Notă biografică

Sue Ziebland is an Oxford University Reader in Qualitative Health Research and research director of the Health Experiences Research Group, based in the Department of Primary Care Health Sciences. She is a research fellow at Green Templeton College, Oxford with a background in medical sociology. She has worked as a researcher in the academic, NHS and voluntary sectors and has published over 100 papers and chapters in social science and health publications. Since 2000 she has worked closely with the DIPEx charity which publishes qualitative health experiences research on the websites www.healthtalkonline.org and www.youthhealthtalk.org. Sue's other research interests include people's use of the internet for health information and qualitative research methods (which she teaches at various levels).Joseph heads the Medical Anthropology Section at the Department of Anthropology, University College London. He completed his doctoral training at the University of Chicago, and has completed fellowships in Clinical Psychology and Medical Anthropology at Harvard Medical School and was the Cannon Fellow in Patient Experiences and Health Policy at Green Templeton College, Oxford. His research focuses on ethnographic projects that produce data with clinical and anthropological value, motivated by a desire to understand cultural diversity in approaches to health and healing. His fieldwork includes two years within the Navajo Nation studying a healing movement called the Native American Church, several months spent in Haiti attending spirit possession rituals, several years studying stigma and recovery efforts among persons with severe mental illness in Chicago, and work on an ethnographic study of the experiences of psychiatric patients at various teaching hospitals in the area of Boston, USA.Louise is Deputy Research Director at the Health Experiences Research Group (HERG), University of Oxford, and Health Experiences Fellow at the Oxford Biomedical Research Centre. After a career in NHS management, Louise completed a PhD on healthcare rationing in the NHS market at the London School of Economics, and spent time researching healthcare organization, management and change at Templeton College, Oxford and the Health Services Management Centre, University of Birmingham. Since joining HERG in 2003, she has specialized in qualitative research into personal experiences of health and illness, and has led studies on antenatal screening and motor neurone disease. She now focuses on experiences of taking part in medical research, including clinical trials and cohort studies. Louise is interested in how personal narratives can be used to improve the quality and organization of care, and is researching their use in experience-based co-design, informing NICE guidelines and NHS commissioning.Angela is a health policy analyst and researcher who specialises in patient and public involvement in healthcare. She is Director of Global Initiatives at the Informed Medical Decisions Foundation, Boston, and Senior Research Scientist at the Department of Public Health, University of Oxford. She is a Senior Visiting Fellow at the King's Fund in London, holds Honorary Fellowships at the UK Faculty of Public Health and the Royal College of General Practitioners and is a Trustee of National Voices. Angela has published more than 250 research papers and reports and several books. Her latest book, Engaging Patients in Healthcare, was published by Open University Press in August 2011. She was the founding editor of Health Expectations, an international peer-reviewed journal on patient and public involvement in health care and health policy. In January 2012 she was awarded the Donabedian International Award in healthcare quality for her work on patient-centred care.