The Patient as Agent of Health and Health Care: Autonomy in Patient-Centered Care for Chronic Conditions

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en Limba Engleză Carte Hardback – 09 Feb 2017
Patient-centered care for chronic illness is founded upon the informed and activated patient, but we are not clear what this means. We must understand patients as subjects who know things and as agents who do things. Bioethics has urged us to respect patient autonomy, but it has understood this autonomy narrowly in terms of informed consent for treatment choice. In chronic illness care, the ethical and clinical challenge is to not just respect, but to promote patientautonomy, understood broadly as the patients' overall agency or capacity for action. The primary barrier to patient action in chronic illness is not clinicians dictating treatment choice, but clinicians dictating the nature of the clinical problem. The patient's perspective on clinical problems isnow often added to the objective-disease perspective of clinicians as health-related quality of life (HRQL). But HRQL is merely a hybrid transitional concept between disease-focused and health-focused goals for clinical care. Truly patient-centered care requires a sense of patient-centered health that is perceived by the patient and defined in terms of the patient's vital goals. Patient action is an essential means to this patient-centered health, as well as an essential component of thishealth. This action is not extrinsically motivated adherence, but intrinsically motivated striving for vital goals. Modern pathophysiological medicine has trouble understanding both patient action and health. The self-moving and self-healing capacities of patients can be understood only if we understandtheir roots in the biological autonomy of organisms. Taking the patient as the primary perceiver and producer of health has the following policy implications: 1] Care will become patient-centered only when the patient is the primary customer of care. 2] Professional health services are not the principal source of population health, and may lead to clinical, social and cultural iatrogenic injury. 3] Social justice demands equity in health capability more than equal access to healthservices.
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ISBN-13: 9780195386585
ISBN-10: 0195386582
Pagini: 456
Dimensiuni: 167 x 243 x 39 mm
Greutate: 0.74 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării: New York, United States


I [...] found the patient case studies presented throughout the book to be a fabulous way to introduce actual people, with actual, and indeed common concerns, and very human behaviors. These people were excellent at personifying difficult concepts and patient care challenges. [...] The book provides a truly holistic approach and a thorough provision of information on a variety of subjects that truly comprise the possibility of "the patient as agent of health andhealth care.
I strongly recommend this book to health professionals, policymakers, bioethicists, academics, and patients who have an interest in patient education and engagement, shared decision making, alternative models of health care, chronic disease management, and/or end of life care.

Notă biografică

Professor of Psychiatry and Behavioral Sciences; Adjunct Professor of Medical History and Ethics, University of Washington