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Fixing Sex de Katrina Karkazis

Fixing Sex

Autor Katrina Karkazis
en Limba Engleză Paperback – 11 noi 2008

În volumul Fixing Sex, Katrina Karkazis documentează o schimbare de paradigmă profundă în medicina americană, unde protocoalele chirurgicale de „normalizare” a sugarilor cu trăsături intersex, neschimbate din anii 1950, au intrat într-o criză de legitimitate. Găsim aici prima analiză multi-perspectivă care refuză retorica polarizată, preferând în schimb o investigație nuanțată asupra modului în care diagnosticul de „ambiguitate” genitală declanșează o mobilizare a instituțiilor sociale și medicale. Structura cărții se bazează pe o cercetare calitativă vastă, integrând vocile adulților care au trecut prin aceste proceduri, ale părinților puși în fața unor decizii imposibile și ale clinicienilor care navighează între etică și tradiția medicală. Descoperim în această lucrare o deconstrucție a modului în care biologia este forțată să se alinieze normelor culturale de gen. Katrina Karkazis analizează cum tehnologia și presiunea socială au dictat tratamente invazive pentru a corecta ceea ce medicina a definit drept „anormal”, ignorând adesea autonomia viitoare a individului. Cititorii familiarizați cu Lessons from the Intersexed de Suzanne J. Kessler vor aprecia modul în care acest volum extinde analiza sociologică, aducând în discuție și evoluțiile politice și juridice recente care au început să redefinească peisajul managementului intersex. Spre deosebire de abordările pur teoretice, lucrarea publicată de Duke University Press rămâne ancorată în realitatea umană, oferind un context istoric esențial pentru înțelegerea dezbaterilor actuale despre integritatea corporală și identitatea de gen.

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Specificații

ISBN-13: 9780822343189
ISBN-10: 0822343185
Pagini: 384
Dimensiuni: 152 x 229 x 21 mm
Greutate: 0.55 kg
Ediția:1
Editura: Duke University Press

De ce să citești această carte

Această carte este esențială pentru studenții la sociologie, etică medicală și studii de gen, oferind o perspectivă rară asupra modului în care medicina modelează identitatea umană. Cititorul câștigă o înțelegere profundă a tensiunilor dintre autoritatea clinică și drepturile pacienților, primind un instrument critic pentru a evalua cum prejudecățile culturale pot influența deciziile chirurgicale ireversibile.

Cuprins

Acknowledgments; IntroductionPart I What Is Intersexuality? History and Theory 1 The Taxonomies of Intersexuality to the 1950s; 2 John Money and the Development of the Traditional Treatment Paradigm for Intersexuality; 3 Scientific Challenges to the Traditional Treatment Paradigm for IntersexualityPart II Making Decisions for and about a Baby with an Intersex Diagnosis 4 Bodies of Mixed Evidence and Assigning Gender: Is It a Boy or a Girl?; 5 Surgery and the Production of Normative Sexuality in IntersexualityPart III Living the Medicalized Body: Parents and Individuals with an Intersex Diagnosis 6 Wanting and Deciding What’s Best: Experiences of Parents of Children with Intersex Diagnoses; 7 Growing Up with an Intersex Diagnosis: Experiences of Children and Adults; 8 The Intersex Body in the World: Support Groups, Activism, and Social and Medical Change

Recenzii

“The cultural rules of gender are complex, and they are never more tested than in the case of intersex. Fixing Sex is a huge addition to the field, encompassing as it does the views of clinicians, patients, parents, and others. The topic is intrinsically interesting, but Katrina Karkazis’s wonderful writing makes this a compelling story and a great read.”—Abraham Verghese, M.D., author of The Tennis Partner and Senior Associate Chair for the Theory and Practice of Medicine, Stanford University“With her fascinating field data, Katrina Karkazis exposes the contentious disagreements among theoreticians, physicians, intersex adults, and parents—and all that those debates imply about the changing landscape of gender and intersex management.”—Suzanne J. Kessler, author of Lessons from the Intersexed“I couldn’t put Fixing Sex down once I started it! Masterfully balancing all aspects of one of the most polarizing, contentious topics in medicine, this thoughtful book is destined to become the most recent authoritative treatise on intersex. Non-medical persons will find it easily digestible, yet it is a ‘must-read’ for every pediatrician and pediatric subspecialist caring for children with disorders of sex development.”—Kenneth C. Copeland, M.D., Jonas Professor of Pediatrics, University of Oklahoma College of Medicine, and former President of the Lawson Wilkins Pediatric Endocrine Society“This meticulous, sensitive, and brilliantly executed book will transform our knowledge of intersexuality, gender, and the ethnographic study of medical practice.”—Gayle Rubin, Assistant Professor of Anthropology and Women’s Studies, University of Michigan“This book is a velvet-gloved punch to the gut. Fixing Sex is astonishing, a tale told straight from the mouths of affected adults, parents, and physicians in tender and lyrical prose. It resonated deeply with my memories of motherhood in the disorders of sexual development community. But the chapters devoted to clinicians made me weep. A physician myself, I remember my disbelief as the worlds of intersex and medicine collided in my own family. An extraordinary book for a wide audience, it is a huge step toward reconciliation and spiritual healing for its protagonists.”—Arlene B. Baratz, M.D., family and medical consultant, Androgen Insensitivity Syndrome Support Group and Accord Alliance
"The cultural rules of gender are complex, and they are never more tested than in the case of intersex. Fixing Sex is a huge addition to the field, encompassing as it does the views of clinicians, patients, parents, and others. The topic is intrinsically interesting, but Katrina Karkazis's wonderful writing makes this a compelling story and a great read."--Abraham Verghese, M.D., author of The Tennis Partner and Senior Associate Chair for the Theory and Practice of Medicine, Stanford University "With her fascinating field data, Katrina Karkazis exposes the contentious disagreements among theoreticians, physicians, intersex adults, and parents--and all that those debates imply about the changing landscape of gender and intersex management."--Suzanne J. Kessler, author of Lessons from the Intersexed "I couldn't put Fixing Sex down once I started it! Masterfully balancing all aspects of one of the most polarizing, contentious topics in medicine, this thoughtful book is destined to become the most recent authoritative treatise on intersex. Non-medical persons will find it easily digestible, yet it is a 'must-read' for every pediatrician and pediatric subspecialist caring for children with disorders of sex development."--Kenneth C. Copeland, M.D., Jonas Professor of Pediatrics, University of Oklahoma College of Medicine, and former President of the Lawson Wilkins Pediatric Endocrine Society "This meticulous, sensitive, and brilliantly executed book will transform our knowledge of intersexuality, gender, and the ethnographic study of medical practice."--Gayle Rubin, Assistant Professor of Anthropology and Women's Studies, University of Michigan "This book is a velvet-gloved punch to the gut. Fixing Sex is astonishing, a tale told straight from the mouths of affected adults, parents, and physicians in tender and lyrical prose. It resonated deeply with my memories of motherhood in the disorders of sexual development community. But the chapters devoted to clinicians made me weep. A physician myself, I remember my disbelief as the worlds of intersex and medicine collided in my own family. An extraordinary book for a wide audience, it is a huge step toward reconciliation and spiritual healing for its protagonists."--Arlene B. Baratz, M.D., family and medical consultant, Androgen Insensitivity Syndrome Support Group and Accord Alliance

Textul de pe ultima copertă

"This book is a velvet-gloved punch to the gut. "Fixing Sex" is astonishing, a tale told straight from the mouths of affected adults, parents, and physicians in tender and lyrical prose. It resonated deeply with my memories of motherhood in the disorders of sex development community. But the chapters devoted to clinicians made me weep. A physician myself, I remember my disbelief as the worlds of intersex and medicine collided in my own family. An extraordinary book for a wide audience, it is a huge step toward reconciliation and spiritual healing for its protagonists."--Arlene B. Baratz, M.D., family and medical consultant, Androgen Insensitivity Syndrome Support Group and Accord Alliance

Descriere

What happens when a baby is born with “ambiguous” genitalia or a combination of “male” and “female” body parts? Clinicians and parents in these situations are confronted with complicated questions such as whether a girl can have XY chromosomes, or whether some penises are “too small” for a male sex assignment. Since the 1950s, standard treatment has involved determining a sex for these infants and performing surgery to normalize the infant’s genitalia. Over the past decade intersex advocates have mounted unprecedented challenges to treatment, offering alternative perspectives about the meaning and appropriate medical response to intersexuality and driving the field of those who treat intersex conditions into a deep crisis. Katrina Karkazis offers a nuanced, compassionate picture of these charged issues in Fixing Sex, the first book to examine contemporary controversies over the medical management of intersexuality in the United States from the multiple perspectives of those most intimately involved. Drawing extensively on interviews with adults with intersex conditions, parents, and physicians, Karkazis moves beyond the heated rhetoric to reveal the complex reality of how intersexuality is understood, treated, and experienced today. As she unravels the historical, technological, social, and political forces that have culminated in debates surrounding intersexuality, Karkazis exposes the contentious disagreements among theorists, physicians, intersex adults, activists, and parents—and all that those debates imply about gender and the changing landscape of intersex management. She argues that by viewing intersexuality exclusively through a narrow medical lens we avoid much more difficult questions. Do gender atypical bodies require treatment? Should physicians intervene to control the “sex” of the body? As this illuminating book reveals, debates over treatment for intersexuality force reassessment of the seemingly natural connections between gender, biology, and the body.