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A Twisted Fate

Autor Brenda Currey Lewis
en Limba Engleză Hardback – 4 noi 2013
Brenda Currey Lewis was a typical, active child. But when she was seven years old her life changed dramatically. Generalized dystonia (dystonia musculorum deformans) turned her muscles against her. This rare neurological movement disorder causes muscle groups to tug and twist the body into abnormal postures. Brenda started walking on the outer edge of her right foot, and within a year she was wheelchair bound. The symptoms gradually spread through most of her body. For almost forty years Brenda has experienced uncontrollable muscle movements that have wreaked havoc in her body, but not her spirit. This is a story of resilience in the face of a little-known, confusing, and debilitating condition. The author takes you on a journey from skating rinks to surgical suites, from bicycles to wheelchairs, from doubt to determination. Brenda's quirky sense of humour makes this candid account of life with dystonia a thought-provoking and an entertaining read.
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Specificații

ISBN-13: 9781460220436
ISBN-10: 1460220439
Pagini: 256
Dimensiuni: 145 x 222 x 19 mm
Greutate: 0.51 kg
Editura: Friesenpress

Notă biografică

Brenda Currey Lewis is an author, patient advocate, and community leader who has lived with generalized dystonia since 1974. Following her childhood diagnosis, she turned her personal challenges into a lifelong mission of public education and advocacy. Brenda served as the President of the Edmonton Dystonia Support Group for nearly thirty years, where she established vital support networks and provided peer mentorship to newly diagnosed patients navigating the complexities of neurological movement disorders. Her work is deeply integrated with leading national organizations, including the Dystonia Medical Research Foundation (DMRF) Canada and global movement disorder advocacy networks. A Twisted Fate: My Life with Dystonia is her premier literary contribution, written to bring visibility to hidden disabilities and to provide an empathetic, humorous, and authoritative resource for readers seeking authentic accounts of neurological resilience.