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What Patients Teach: The Everyday Ethics of Health Care de Larry R. Churchill

What Patients Teach: The Everyday Ethics of Health Care

Autor Larry R. Churchill, Joseph B. Fanning, David Schenck
en Limba Engleză Paperback – 8 dec 2016

În volumul What Patients Teach, abordăm etica medicală nu din perspectiva teoriilor abstracte, ci prin prisma experienței directe a bolnavului. Remarcăm o schimbare de paradigmă necesară: trecerea de la o bioetică formală la o etică a interdependenței cotidiene. Considerăm că forța acestei lucrări rezidă în fundamentul său empiric, fiind analizate 50 de interviuri cu 58 de pacienți. Această bază de date oferă o perspectivă unică asupra modului în care relația terapeutică este construită pe vulnerabilitate și pe răspunsul moral al clinicianului.

Manualul este o referință esențială în domeniul relației asistent-pacient, fiind comparabil cu Ethics From the Ground Up de Julie Wintrup, dar se distinge prin concentrarea strictă pe vocea pacientului ca sursă de reformare a codurilor profesionale. În timp ce alte lucrări pornesc de la principii etice aplicate, autorii Larry R. Churchill, Joseph B. Fanning și David Schenck inversează procesul, lăsând interacțiunile umane să dicteze norma etică. Cartea continuă direcția explorată de Larry R. Churchill în Bioethics Reenvisioned și The Social Medicine Reader, Second Edition, extinzând viziunea sa asupra responsabilității sociale și a necesității unei viziuni morale lărgite în medicina secolului XXI. Stilul este analitic, dar profund uman, transformând mărturiile pacienților în piloni pentru o nouă pedagogie medicală. Recomandăm acest volum pentru rigoarea cu care tratează simbioza morală dintre medic și pacient, oferind instrumente concrete pentru recalibrarea actului medical conform nevoilor reale ale celor îngrijiți.

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Specificații

ISBN-13: 9780190650582
ISBN-10: 0190650583
Pagini: 208
Dimensiuni: 137 x 208 x 15 mm
Greutate: 0.27 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării:New York, United States

De ce să citești această carte

Această carte este indispensabilă pentru medicii, asistenții și studenții care doresc să înțeleagă etica dincolo de protocoale. Cititorul câștigă o perspectivă profundă asupra modului în care pacienții percep îngrijirea, primind ghidaj pentru a transforma interacțiunile de rutină în acte terapeutice autentice. Este un instrument practic pentru oricine dorește să practice o medicină mai empatică și ancorată în realitatea umană.

Despre autor

Larry R. Churchill este profesor și șef al Departamentului de Medicină Socială la Universitatea din Carolina de Nord, Chapel Hill. Expertiza sa vastă în bioetică și medicină socială este reflectată în lucrări de referință precum Bioethical Responsibilities in Twenty-First Century Crises și Ethics for Everyone. Prin opera sa, Churchill pledează constant pentru o etică aplicată, care să pună în dialog valorile filosofice cu provocările cotidiene ale sistemului de sănătate, punând accent pe responsabilitatea morală a profesioniștilor în fața vulnerabilității pacienților.

Descriere

Being a patient is a unique interpersonal experience but it is also a universal human experience. The relationships formed when we are patients can also teach some of life's most important lessons, and these relationships provide a special window into ethics, especially the ethics of healthcare professionals. This book answers two basic questions: As patients see it, what things allow relationships with healthcare providers to become therapeutic? What can this teach us about healthcare ethics? This volume presents detailed descriptions and analyses of 50 interviews with 58 patients, representing a wide spectrum of illnesses and clinician specialties. The authors argue that the structure, rhythm, and horizon of routine patient care are ultimately grounded in patient vulnerability and clinician responsiveness. From the short interview segments, the longer vignettes and the full patient stories presented here emerge the neglected dimensions of healthcare and healthcare ethics. What becomes visible is an ethics of everyday interdependence, with mutual responsibilities that follow from this moral symbiosis. Both professional expressions of healthcare ethics and the field of bioethics need to be informed and reformed by this distinctive, more patient-centered, turn in how we understand both patient care as a whole and the ethics of care more specifically. The final chapters present revised codes of ethics for health professionals, as well as the implications for medical and health professions education.

Recenzii

This an outstanding contribution to the ethics literature
The near-universal complaint among disappointed patients is, 'My doctor doesn't listen.' Churchill, Schenck, and Fanning let the patients themselves tell us exactly what it means to listen within the context of a truly therapeutic relationship, thoughtfully describing the unglamorous, everyday world of solid medical practice. Along the way, they force us to rethink many of our assumptions about what most matters ethically in health care.
What Patients Teach, with its companion volume, Healers, gives health-care professionals the clearest, most practical, best researched guide to relationships with their patients. Few books offer as constructive a vision of what clinical care can be. The authors' concluding call for a reorientation of bioethics to focus on patients' vulnerability deserves to debated and, I hope, implemented. These books are essential reading for anyone concerned with the humane delivery of health care.
This is an essential book in medical ethics. Drawing on extensive interviews, the authors emphasize the patient's agency and the body's belonging to a community, and they see the trust that's central to the patient-physician relationship as a reciprocity of vulnerability and responsiveness. This "doubled agency" leads them to a reassessment of principlism; in their view ethical principles are the boundary conditions of that relationship, useful primarily when trust fails.
This is a good resource to highlight the patient perspective for clinicians. The authors allow patient stories to be told with little interruption, preserving an authentic patient voice, and still carry out an effective discussion and analysis of the contributions that these perspectives make to the ethics of healthcare.
The essential opinions about patients expressed by the physicians in Healers are ineluctably subjective; they are not measurable and cannot be made objective. To comprehend that is to realize also how imperative thoughtful subjectivity is not only to clinical medicine and bioethics but also to how persons live their lives generally. Understand that, and you will begin to be free of scientism outside of its rightful domain. I believe you will come away from these books with an increased appreciation of healing and a wider and more human view of ethics.

Notă biografică

Larry R. Churchill is the Anne Geddes Stahlman Professor of Medical Ethics, Professor of Medicine and Professor of Philosophy and Religion at Vanderbilt. His major works include a 1987 book Rationing Health Care in America (Univ. of Notre Dame Press), a 1994 book Self-Interest and Universal Health Care (Harvard Univ. Press, selected a Choice Magazine Outstanding Academic Book for 1995). With Marion Danis and Carolyn Clancy he edited Ethical Dimensions of Health Policy, (Oxford University Press) in 2002.Joseph B. Fanning is Assistant Professor of Medicine in the Center for Biomedical Ethics and Vanderbilt University Medical Center. He serves as the Director of the Clinical Ethics Consultations Service and works with patients, families and clinicians on ethical concerns that arise in patient care. His research focuses on the importance of communication in building therapeutic relationships. In 2009, Fanning co-edited with Ellen Wright Clayton a special issue of the American Journal of Medical Genetics that focused on spiritual and religious issues in medical genetics. He has also co-authored articles on the philosophy and practice of clinical ethics consultation. He is a lead investigator on a pilot project funded by the Baptist Healing Trust that seeks to understand how health care teams and families of incapacitated patients coordinate expectations about the future course of care.David Schenck is a Research Assistant Professor, Department of Medicine, of the Center for Biomedical Ethics and Society at the Vanderbilt University Medical Center. After twenty years as a professor of philosophy and religion, Schenck served as the founding executive director of a free medical clinic, and as a counselor and healthcare advocate for the homeless. He has volunteered and worked for many hospices over the last twenty years. Schenck has published articles in: Annals of Internal Medicine, Cambridge Quarterly of Healthcare Ethics, Social Medicine Reader, Society, Journal British Society Phenomenology, Phenomenology and Philosophical Research, Soundings, Journal of Religious Ethics, International Philosophical Quarterly, International Studies in Philosophy, Human Studies. He is the author, with Larry R. Churchill, of Healers: Extraordinary Clinicians at Work (Oxford University Press, 2011)