Visions: The Inspirational Journeys of Epilepsy Advocates
Editat de Linda Sudlesky, Steven C. Schachteren Limba Engleză Hardback – 24 ian 2020
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Specificații
ISBN-13: 9780190692070
ISBN-10: 0190692073
Pagini: 372
Dimensiuni: 155 x 236 x 23 mm
Greutate: 0.82 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării:New York, United States
ISBN-10: 0190692073
Pagini: 372
Dimensiuni: 155 x 236 x 23 mm
Greutate: 0.82 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării:New York, United States
Notă biografică
Linda Sudlesky is an Instructional Designer at the University of Massachusetts Boston, an artist, an advocate, and a person with epilepsy. She also works as a community support staff and advocate for people with intellectual disabilities. She has done community education on epilepsy, serves as a volunteer for Citizens United for Research in Epilepsy (CURE) and as a committee member for 1:26 Art of Epilepsy, Boston.Dr. Steven Schachter is the Chief Academic Officer for the Consortia for Improving Medicine with Innovation & Technology (CIMIT) and a Professor of Neurology at Harvard Medical School. He has published over 250 articles and chapters and edited or written 35 books. He is the founding editor and editor-in-chief of the medical journals Epilepsy & Behavior and Epilepsy & Behavior Case Reports.
Cuprins
- Dedication
- Acknowledgments
- Preface
- Introduction
- Section 1: Education and Awareness
- 1. Anita's Vision
- Debra Josephs
- 2. Talking About Epilepsy
- Ken Lowenberg
- 3. In Honor of Carolina
- Eric Miller
- 4. Parent, Researcher, Advocate
- Joan K. Austin
- 5. Purple Day
- Cassidy Megan
- 6. My Epilepsy Story
- Brandy Parker-McFadden
- Section 2: Empowerment
- 7. Hidden Truths
- Julie Thompson-Dobkin
- 8. The Intermission - My Story
- Joyce Bender
- 9. You Can
- Meg Busing
- 10. Ministry of Advocacy
- Tony Coelho
- Section 3: Fundraising
- 11. Livy's Hope
- The Scheinman Family
- 12. Pyramids for Kevin
- Patricia Barnes
- 13. With Every Step There is Help
- Amanda Marrazzo
- 14. Sharon's Ride.Run.Walk
- William E. Rosenfeld and Susan M. Lippmann
- Section 4: Healthcare and Research
- 15. Our Journey for Adelaide
- Kelly Cervantes
- 16. Person with Epilepsy, Doctor, and Advocate
- Brien Smith
- 17. Giving Hope
- Jim Abrahams
- 18. Navigating a New Path
- Susan Arthurs
- 19. My Road to Advocacy - A Personal Tale of Triumph with Epilepsy
- Kenneth R. Kaufman
- 20. My Advocacy Journey
- Catherine Jacobson
- 21. One Family at a Time
- Sookyong Koh
- 22. Guiding Others' Journey Through Neurosurgery
- Monika Jones
- Section 5: Organizational Advocacy
- 23. Epilepsy Education Everywhere
- Meghan Kennedy
- 24. Hope for a Brighter Tomorrow
- Phil and Jill Gattone
- 25. Making a Difference
- Laurie Kelly
- 26. My Journey as an Advocate for People With Epilepsy
- Mary MacLeish
- 27. Making Changes in the World
- Kevin Malone
- 28. The Light of Our Lives
- Kari Luther Rosbeck
- 29. Moving the Field Forward
- Mary Anne Meskis
- 30. My Path to Advocacy
- Deb McGrath
- 31. Diagnosis of Uncertainty to Positive Impact
- Jessica Veach
- Section 6: Rare Forms of Epilepsy
- 32. Together there is Hope
- Lisa Dunn Soeby
- 33. Esmé's Journey
- Hillary Savoie
- 34. Family, Advocacy, and Tracking Seizures
- Rob and Lisa Moss
- 35. Advocacy Takes Many Forms
- Barbara Swoyer
- 36. Hope for Many
- Ilene Miller
- 37. Hope for Better Options
- Seth Wohlberg
- Section 7: Sports / Athletics
- 38. Climbing My Personal Mountain
- John Tom Olson
- 39. Strength, Epilepsy, and Advocacy
- Chanda Gunn
- 40. Running to End Epilepsy
- Loren Zitomersky
- Section 8: SUDEP
- 41. Telling Christopher's Story
- Jeanne Donalty
- 42. Change, Meaning, and Purpose
- Linda Coughlin-Brooks
- 43. Chelsea's Circle
- Julie L. Hutchison
- 44. Go and Enjoy Your Life
- Mike Stanton
- Section 9: Writing and Arts
- 45. Advocacy Through Informed Writing
- Phylis Feiner Johnson
- 46. Becoming an Epilepsy Advocate
- Nathan Plung
- 47. My Journey with Calvin
- Christy Shake
- 48. When the Spirit Catches You
- Cynthia Folio
- Conclusion
- Glossary