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Spectrum Women: Walking to the Beat of Autism

Editat de Barb Cook, Michelle Garnett Contribuţii de Jen Elcheson, Artemisia, Catriona Stewart, Anita Lesko, Liane Holliday Willey, Samantha Craft, Yenn Purkis, Kate Ross, Becca Lory, Renata Jurkevythz, Terri Mayne, Maura Campbell, Dena Gassner Cuvânt înainte de Lisa Morgan Contribuţii de Christine Jenkins
en Limba Engleză Paperback – 21 aug 2018

Descoperim aici o abordare rară în literatura de specialitate: vocea autentică a femeii autiste pusă în dialog direct cu expertiza clinică. Notăm cu interes cum Spectrum Women nu se mulțumește doar să descrie simptome, ci începe prin a explora concepte fundamentale precum „găsirea tribului” și construcția identității ca o lucrare în curs de desfășurare. Volumul este structurat tematic, pornind de la experiența creșterii pe spectru și evoluând spre aspecte pragmatice ale maturității: de la gestionarea anxietății și a siguranței personale, până la independență și integrarea în câmpul muncii.

Merită menționat că abordarea Barb Cook păstrează continuitatea temelor din lucrările sale anterioare, precum The Autism and Neurodiversity Self Advocacy Handbook, punând un accent deosebit pe împuternicirea individului. Totuși, aici perspectiva este lărgită prin contribuțiile celor 14 co-autoare, oferind o viziune mozaicată asupra feminității neurodivergente. Complementar volumului Women and Girls on the Autism Spectrum de Sarah Hendrickx, care oferă o privire de ansamblu bazată pe cercetare asupra întregului parcurs al vieții, Spectrum Women explorează mai profund nuanțele subiective și emoționale ale acestor experiențe, fiind mai degrabă un ghid de supraviețuire și celebrare a diferenței.

Structura narativă este echilibrată: după fiecare confesiune sinceră despre senzorialitate sau relații, cititorul primește instrumente de validare de la Michelle Garnett. Această dualitate face ca lectura să fie nu doar o incursiune empatică, ci și un manual practic pentru navigarea într-o lume care, adesea, nu este proiectată pentru mințile neurodivergente. Este o resursă esențială care transformă „diagnosticul” într-o experiență asumată de viață.

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Specificații

ISBN-13: 9781785924347
ISBN-10: 1785924346
Pagini: 336
Ilustrații: n/a
Dimensiuni: 152 x 228 x 28 mm
Greutate: 0.42 kg
Editura: JESSICA KINGSLEY PUBLISHERS
Colecția Jessica Kingsley Publishers
Locul publicării:London, United Kingdom

De ce să citești această carte

Recomandăm această carte tuturor femeilor care au primit un diagnostic la maturitate sau care simt că experiența lor nu se regăsește în descrierile standard ale autismului. Cititorul câștigă o comunitate de mentori care au trecut prin aceleași provocări, de la maternitate la carieră. Este un instrument de auto-cunoaștere care înlocuiește stigmatul cu strategii concrete de auto-îngrijire și independență, validând totodată nevoile senzoriale specifice.


Despre autor

Barb Cook este o figură centrală în advocacy-ul pentru neurodiversitate, fiind recunoscută pentru eforturile sale de a oferi resurse practice persoanelor pe spectru. În lucrările sale, precum Planning Your Career Through Intense Interests, ea explorează modul în care interesele specifice pot fi transformate în puncte forte profesionale. Ca editor și autor, Cook se concentrează pe auto-reprezentare și pe sprijinirea părinților neurodivergenți, așa cum demonstrează în Spectrum Women—Autism and Parenting. Expertiza sa este dublată de experiența personală, ceea ce oferă textelor sale o autoritate morală și o claritate pragmatică deosebită.


Descriere

Barb Cook and 14 other autistic women describe life from a female autistic perspective, and present empowering, helpful and supportive insights from their personal experience for fellow autistic women. Michelle Garnett's comments validate and expand the experiences described from a clinician's perspective, and provide extensive recommendations.

Autistic advocates including Liane Holliday Willey, Anita Lesko, Jeanette Purkis, Artemisia and Samantha Craft offer their personal guidance on significant issues that particularly affect women, as well as those that are more general to autism. Contributors cover issues including growing up, identity, diversity, parenting, independence and self-care amongst many others. With great contributions from exceptional women, this is a truly well-rounded collection of knowledge and sage advice for any woman with autism.

Recenzii

A friend once told me that getting an autism diagnosis in mid-life was like finding the Rosetta Stone to herself. This marvelously honest and historically important book will be that Rosetta Stone for many women on the spectrum who will recognize aspects of their own lived experience on every page. I am in awe of the practical wisdom and uplifting encouragement assembled here by these wise elders of their tribe.
Spectrum Women: Walking to the Beat of Autism brings us the voice of spectrum women, adding multi-faceted layers of Autism knowledge previously unavailable to Professionals and lay people alike. Throughout the chapters the writers not only share their lives, but often bare the intimate recesses of their souls with the reader. This book marks a pivotal moment in the history of Autism - we now have a definitive resource on Autistic women available to us.
Spectrum Women is a beautiful tapestry woven in wisdom, humour and hope. I found myself laughing out loud and quietly nodding with each resonating reflection of life within its pages. In a world of misinformation around autism, with these spectrum sisters, you are in good and safe hands.
Spectrum women have a voice that needs to be heard. They need people to understand the challenges they face in daily life, and to recognise their talents and many achievements. The coherent explanations and wise advice provided in this book are highly recommended for women with ASD, their families and clinicians.
For too many years, women on the spectrum have been pushed aside in terms of diagnosis, intervention and support. It took a long time before professionals finally understand and recognize the complexity and richness of the female profile of ASD. Spectrum Women's book is a breakthrough in many ways. First account and professionals combine their views and experience to provide rich and valuable information. I salute this initiative because this book will become a fundamental resource for the ASD community, families and professionals.
Spectrum Women more than fills a gap, it addresses the huge void and absence of critical information to best understand, support and develop meaningful relationships with autistic women. Written eloquently by women who have experienced first-hand the misconceptions, misinformation and lack of recognition of the unique characteristics and abilities of autistic women, Spectrum Women will become the voice and the essential work that will help to further advance the inclusion, acceptance and appreciation of so many individuals who have been marginalized for so many years.
Filling a yawning gap in the autism literature with a combination of lived experience and research, recognition of women on the autism spectrum comes of age. In addition to these pioneering authors bringing awareness, acceptance, and appreciation of females on the autism spectrum to new heights, this amazing contribution teaches everyone the beauty of human diversity.
By far this is the best book I have read about autistic females. As an autistic woman, wife and mother to a daughter on the spectrum, this book is such a treat. This book gives a sense of belonging, packed full of valuable information, honest insights and great advice, wrapped beautifully together with Dr Michelle Garnett's supporting views.

The 15 autistic authors share their personal experiences, covering many aspects of life for fellow Spectrum Women from disclosure, sensory issues, communication, health, anxiety, self-care to relationships, parenthood and employment. It's the full package.

Spectrum Women: Walking to the beat of Autism will help so many autistic women around the world and will be valuable information to partners, parents and professionals.

Together this tribe of truly amazing women (my autism mentors) have written an absolutely brilliant masterpiece. You are my Dream Team, ladies.

Spectrum Women: Walking to the Beat of Autism is so much more than the average book about autism; it is a collection of works that addresses a significant gap in the publishing world. Informative, emotionally charged, and honest, the chapters guide the reader through a variety of experiences. Through multiple autistic voices and clearly defined summations that acknowledge and validate each writer's experiences from a clinician's understanding, Spectrum Women: Walking to the Beat of Autism is a necessary read for professionals, families, and any woman who belongs within this amazing tribe.
Spectrum Women is a powerful resource to own. This book offers the previously unknown and untold experiences of a vast demographic of autistic women allowing other individuals on the spectrum, their parents, educators and anyone involved in wanting to learn more by understanding and sharing their unique perspectives and challenges. But most of all, this book allows people to realise that a diagnosis doesn't have to be and shouldn't be seen as doom and gloom. Allow these women to transport you into their minds and their hearts to gain a new perspective of knowledge.

Cuprins

Foreword. Preface. Introduction. 1. Finding Your Tribe, Maura Campbell (Killyleagh, County Down, Northern Ireland). 2. Growing up on the Spectrum, Jen Elcheson (Prince George, British Columbia, Canada) & Barb Cook (Sunshine Coast, Queensland, Australia). 3. Identity: A Beautiful Work in Progress, Artemisia (Planet Earth, Galaxy: Milky Way). 4. Diversity: Gender, Intersectionality and Feminism, Catriona Stewart (Dunblane, Stirlingshire, Scotland, United Kingdom). 5. Personal Relationships, Jen Elcheson (Prince George, British Columbia, Canada) & Anita Lesko (Pensacola, Florida, USA). 6. Socializing, Anxiety and Addictions, Barb Cook (Sunshine Coast, Queensland, Australia). 7. Personal Safety, Liane Holliday Willey (Michigan, USA). 8. A Real Parent, Samantha Craft (Olympia, Washington, USA). 9. Independence, Barb Cook (Sunshine Coast, Queensland, Australia). 10. Promoting Positive Employment, Jeanette Purkis (Canberra, Australian Capital Territory, Australia). 11. Our Sensory Worlds, Kate Ross (Gloucestershire, England, United Kingdom), Jen Elcheson (Prince George, British Columbia, Canada) & Barb Cook (Sunshine Coast, Queensland, Australia). 12. Communication, Becca Lory (Long Island, New York, USA). 13. Emotional Regulation, Renata Jurkevythz (Eriskirch, Baden-Württemberg, Germany). 14. Executive Functioning, Terri Mayne (Nottingham, England, United Kingdom), Maura Campbell (Killyleagh, County Down, Northern Ireland) & Kate Ross (Gloucestershire, England, United Kingdom). 15. General Health, Kate Ross (Gloucestershire, England, United Kingdom) & Anita Lesko (Pensacola, Florida, USA). 16. Autism and Co-Occurring Conditions, Anita Lesko (Pensacola, Florida, USA). 17. Considering Autistic Life and Mental Wellness, Dena Gassner (Long Island, New York, USA). 18. Self-Care, Becca Lory (Long Island, New York, USA), Catriona Stewart (Dunblane, Stirlingshire, Scotland, United Kingdom) & Kate Ross (Gloucestershire, England, United Kingdom). 19. Intense Interests, Christine Jenkins (Ottawa, Ontario, Canada) & Renata Jurkevythz (Eriskirch, Baden-Württemberg, Germany). 20. And Another Thing...