**FULL COLOR EDITION** Learning your child has a progressive life limiting disease is one of the toughest road some parents will ever have to walk. What can make this road even more difficult is facing a disease that so many know so little about, a disease that is filled with so many unknowns itself. Mitochondrial disease is a genetic disease that results from failure of the mitochondria in your cells. Over time it can cause cell death and leads to organ system failure. Though it is not rare in occurrence, it is rarely known and often misunderstood. Childhood often brings about many changes and questions. For a child with a disease like mitochondrial disease, often those changes can come about quickly and are not typical differences that are easily relatable to their peers. Through this; beautifully illustrated, full color edition, easy to read children's book you will follow one small child's inquisitive mind as she expresses the questions and observations she has discovered about herself through living with mitochondrial disease.