"Living with a Miracle" is a compelling story of a mother's love and desperate attempt to build a life and family while fighting for her child's life. In the fall of 1988, after a difficult and complicated pregnancy, Syra Marie was born. Elation is not strong enough to express the joy of becoming a mother.
The day after Syra was born; the pediatrician informed me she had a heart murmur. Being a nurse, I was concerned but had no reason to believe it was anything life threatening, many children are born with heart murmurs and lead a normal life. That evening after our "celebration" dinner, we returned to the nursery to see Syra. However, our celebration quickly turned into a nightmare. Life Flight was flying our baby to a children's hospital two hours away. Only two days old following a heart catherization, we were told Syra had a rare and lethal heart defect.
This is a story that cuts to the heart of a mother's love for her child and their journey together against impossible odds.
Here is Syra's story...