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Learning from My Daughter: The Value and Care of Disabled Minds de Eva Kittay

Learning from My Daughter: The Value and Care of Disabled Minds

Autor Eva Kittay
en Limba Engleză Paperback – 17 feb 2026

În centrul volumului Learning from My Daughter se află o provocare directă la adresa tradiției filozofice occidentale: reevaluarea conceptului de „viață bună” prin prisma dizabilității cognitive severe. Putem afirma că Eva Kittay reușește să destabilizeze premisa conform căreia valoarea umană și demnitatea sunt intrinsec legate de capacitatea rațională. Analizând experiența trăită alături de fiica sa, autoarea propune o schimbare de paradigmă, mutând accentul de la autonomia individuală către interdependență și vulnerabilitate corporală.

Ne-a atras atenția modul în care Eva Kittay integrează rigoarea academică cu fragilitatea mărturiei personale. Această abordare metodologică îi permite să abordeze teme etice complexe, precum limitele testării genetice prenatale sau deciziile bioetice radicale, exemplificate prin analiza „Tratamentului Ashley” (intervenția medicală de oprire a creșterii la copiii cu dizabilități cognitive severe). Structura argumentației este construită pentru a demonstra că îngrijirea nu este doar o activitate privată, ci fundamentul unei teorii morale capabile să asigure drepturi depline persoanelor cu limitări cognitive.

Lucrarea completează perspectiva oferită de The Faces of Intellectual Disability de Licia Carlson, adăugând o dimensiune profund personală și o teorie a îngrijirii care lipsește adesea din analizele pur teoretice despre statutul moral. În timp ce alte texte se concentrează pe definirea dizabilității, Learning from My Daughter oferă un model de aplicare a eticii îngrijirii în politici sociale și practici de familie. Această ediție de la Oxford University Press reprezintă un punct de cotitură în filozofia morală contemporană, fiind esențială pentru înțelegerea modului în care co-dependența definește condiția umană.

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Specificații

ISBN-13: 9780197841150
ISBN-10: 0197841155
Pagini: 304
Dimensiuni: 158 x 234 x 22 mm
Greutate: 0.39 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării:New York, United States

De ce să citești această carte

Această carte este esențială pentru studenții la filozofie, etică sau bioetică, dar și pentru profesioniștii din domeniul asistenței sociale. Cititorul câștigă o înțelegere profundă a „eticii îngrijirii”, învățând să privească demnitatea umană dincolo de performanța intelectuală. Este o lectură care umanizează dezbaterea academică, oferind un argument solid pentru incluziunea și recunoașterea valorii intrinseci a persoanelor cu dizabilități cognitive.

Despre autor

Eva Kittay este o distinsă profesoară de filozofie, recunoscută la nivel internațional pentru contribuțiile sale în etica feministă și filozofia dizabilității. Activitatea sa academică este profund marcată de experiența personală ca mamă a unei fiice cu dizabilități multiple, fapt ce i-a permis să dezvolte concepte inovatoare despre dependență și îngrijire. A fost recompensată cu prestigiosul premiu PROSE în 2020 pentru Learning from My Daughter, lucrare ce sintetizează decenii de cercetare și reflecție asupra statutului moral al persoanelor cu limitări cognitive.

Descriere

Winner of the 2020 PROSE Award for Excellence in PhilosophyDoes life have meaning? What is flourishing? How do we attain the good life? Philosophers, and many others of us, have explored these questions for centuries. As Eva Feder Kittay points out, however, there is a flaw in the essential premise of these questions: they seem oblivious to the very nature of the ways in which humans live, omitting a world of co-dependency, and of the fact that we live in and through our bodies, whether they are fully abled or disabled. Our dependent, vulnerable, messy, changeable, and embodied experience colors everything about our lives both on the surface and when it comes to deeper concepts, but we tend to leave aside the body for the mind when it comes to philosophical matters. Disability offers a powerful challenge to long-held philosophical views about the nature of the good life, what provides meaning in our lives, and the centrality of reason, as well as questions of justice, dignity, and personhood. These concepts need not be distant and idealized; the answers are right before us, in the way humans interact with one another, care for one another, and need one another--whether they possess full mental capacities or have cognitive limitations. We need to revise our concepts of things like dignity and personhood in light of this important correction, Kittay argues. This is the first of two books in which Kittay will grapple with just how we need to revisit core philosophical ideas in light of disabled people's experience and way of being in the world. Kittay, an award-winning philosopher who is also the mother to a multiply-disabled daughter, interweaves the personal voice with the philosophical as a critical method of philosophical investigation. Here, she addresses why cognitive disability can reorient us to what truly matters, and questions the centrality of normalcy as part of a good life. With profound sensitivity and insight, Kittay examines other difficult topics: How can we look at the ethical questions regarding prenatal testing in light of a new appreciation of the personhood of disabled people? What do new possibilities in genetic testing imply for understanding disability, the family, and bioethics? How can we reconsider the importance of care, and how does it work best? In the process of pursuing these questions, Kittay articulates an ethic of care, which is the ethical theory most useful for claiming full rights for disabled people and providing the opportunities for everyone to live joyful and fulfilling lives. She applies the lessons of care to the controversial alteration of severely cognitively disabled children known as the Ashley Treatment, whereby a child's growth is halted with extensive estrogen treatment and related bodily interventions are justified.This book both imparts lessons that advocate on behalf of those with significant disabilities, and constructs a moral theory grounded on our ability to give, receive, and share care and love. Above all, it aims to adjust social attitudes and misconceptions about life with disability.

Recenzii

Kittay provides an excellent read in disability theory and philosophy and offers clarity and persistence in addressing very tough questions.
Learning From My Daughter has much to recommend it. Kittay is, as always, incisive, and Learning From My Daughter is both eloquently argued and replete with hard-won insight. It ought to attract a wide readership both within and beyond the academy.
Eva Feder Kittay's is a thought-provoking book on humility, choosing children, and the place of care in philosophy and disability. It recently [2020] won the prestigious PROSE Award for Philosophy. This book deserves a wide readership both in and beyond philosophy... it will constitute a significant resource for philosophers of disability and philosophers more generally.
Eva Feder Kittay's Learning from My Daughter is, in my view, her best work to date. As I read, I felt I was being guided through a varied terrain
Very few philosophers since Plato have thought about disability so productively and generatively as has Eva Kittay. And very few scholars of disability have so enriched the study of philosophy as has Eva Kittay. Learning from My Daughter is a remarkable book, one that I know I will return to again and again in my intellectual journeys. It should be required reading for anyone who wants to think seriously about what makes us human.
Eva Kittay's work on disability is at once both philosophically astute and deeply moving. She writes with the skill of a careful thinker and the passion of a mother, and her perspective on disability is invaluable.
The advent of a new book from Eva Kittay fills me with gratitude and excitement: the clarity of her thinking and the wisdom of her heart mean that these arguments will be welcomed, puzzled over, disputed with, and treasured for many years to come.
This book . . . emphasizes the central role of care in the moral life, explores the nature and value of giving and receiving appropriate care in various practical contexts, and presents and defends a moral theory of care that aims to justify a set of substantive and stringent moral duties to care for others, especially those who are unable to care for themselves. . . . With characteristic and admirable humility and sophistication, Kittay in this book aims systematically to unify and expand her ideas about care into a free-standing moral theory that could be incorporated into other moral theories or extended into a comprehensive one of its own.

Notă biografică

Eva Feder Kittay was Professor of Philosophy at Stony Brook University for over 35 years. She has authored and edited collections as well as numerous articles in the philosophy of language, feminist philosophy, and disability studies. Her pioneering work interjecting questions of care and disability (especially cognitive disability) into philosophy and her work in feminist theory have garnered numerous honors and prizes: the 2003 Woman Philosopher of the Year by the Society for Women in Philosophy, the inaugural prize of the Institut de Mensch, Ethik und Wissenschaft, the Lebowitz prize from the American Philosophical Association and Phi Beta Kappa, a Lifetime Achievement Award from the Center for Discovery, an NEH Fellowship, and a Guggenheim Fellowship. She is the parent of a daughter with very significant disabilities.

Cuprins

  • Foreword by Susan J. Brison
  • Preface and Acknowledgments
  • Part I: Learning to Become a Humbler Philosopher
  • Overview: The Journey and Its Ends
  • Chapter One: On What Matters/Not
  • 1.1 The Story--The Beginning
  • 1.2 The Story Meets the Argument: The Lived Life Matters
  • 1.3 The Argument
  • Chapter Two: The New Normal and a Good Life
  • 2.1 Desiring the Normal
  • 2.2 Examining the Desire for a "Normal Child"
  • 2.3 The Paradox of Normalcy
  • 2.4 Toward More Capacious Norms
  • 2.5 Normalcy and the Good Life
  • A Meditation on Normalcy Inspired by Camus's The Rebel
  • Part II: Choosing Children and The Limits of Planning
  • Overview: Choice and Selection
  • Chapter Three: The Limits of Choice
  • 3.1 Planning a Trip to Italy...
  • 3.2 Landing in Holland
  • 3.3 Choosing Children
  • 3.4 The Problem with Choice
  • 3.5 So What Does "Choice" Mean?
  • Chapter Four: The Ethics of Prenatal Testing and Selection
  • 4.1 The Question
  • 4.2 First Encounters with the Prenatal Testing Debates
  • 4.3 "Something Would Be Lost"--The Extinction Objection
  • 4.4 "All Children Are Burdens"
  • 4.5 With Reproduction Selection, "Families Become Like Exclusive Clubs"
  • 4.6 Making the World a More Welcoming Place for People with Disabilities
  • Chapter Five: How Not to Argue for Selective Reproductive Procedures
  • 5.1 The Nonperson-Affecting Harm Principle
  • 5.2 The Structure of Brock's Argument
  • 5.3 How Not to Argue: Hypotheticals, Idealizations, and Thought Experiments
  • 5.4 Conclusion
  • Addendum: Mother's Choice
  • Part III: Care in Philosophy, Disability, and Ethics
  • Overview: The Lessons of Care
  • Chapter Six: Dependency and Disability
  • 6.1 Introduction: Dependency--Avoidable or Inevitable?
  • 6.2 The Registers of Dependency
  • 6.3 The Construction of Independence
  • 6.4 The Cares of Dependency
  • 6.5 Independence and the Personal Attendant
  • Chapter Seven: An Ethics of Care
  • 7.1 Is Care an Important Concept for Philosophy?
  • 7.2 Features of an Ethics of Care
  • 7.3 Temptations and Critiques of an Ethic of Care
  • Chapter Eight: The Completion of Care--The Normativity of Care
  • 8.1 Starting with the Completion of Care
  • 8.2 The Taking-up of Care--The Logic of Care
  • 8.3 Care, Paternalistic or Respectful
  • 8.5 Moral Luck
  • 8.6 A Moral Obligation to Receive Care?
  • Chapter Nine: Forever Small: The Strange Case of Ashley X
  • 9.1 The Case and the Parents' Justification
  • 9.2 A Tale of Two Girls and One Mother's Journey
  • 9.3 A Care Ethics Framework
  • 9.4 The Ashley Treatment's Questionable Presumptions
  • 9.5 The Social Model and Care's Completion
  • 9.6 Peter Singer Weighs In
  • Afterword: My Daughter's Body--A Meditation on Soul
  • Bibliography
  • Index