Ghost Boy: The Miraculous Escape of a Misdiagnosed Boy Trapped Inside His Own Body
Autor Martin Pistoriusen Limba Engleză Hardback – 11 noi 2013
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Subliniem în această ediție Ghost Boy o structură narativă rară în literatura memorialistică: relatarea retrospectivă a unui om care a petrecut peste un deceniu într-o stare de izolare senzorială și motorie aproape totală. Metodologia autorului Martin Pistorius nu este una clinică, ci una fenomenologică; el reconstruiește cronologia unei vieți care, pentru observatorii externi, părea inexistentă. Apreciem modul în care textul este organizat pentru a evidenția contrastul dintre degradarea fizică rapidă începută în 1988 și procesul lent, adesea dureros, de „trezire” mentală într-un corp care nu răspunde la comenzi.
Analizăm în profunzime consecințele unui diagnostic greșit, un element central care transformă această carte dintr-o simplă relatare medicală într-un studiu despre demnitatea umană și etica îngrijirii. Spre deosebire de alte lucrări care tratează trauma cerebrală, cum ar fi Miracle on 91st Street de Joseph Parenti, unde accentul cade pe un eveniment subit (un accident rutier) și recuperarea fizică imediată, Ghost Boy explorează o perioadă mult mai lungă de captivitate silențioasă. Acoperă aceeași arie a miracolului medical ca My Darkest Hour, dar cu o abordare mai introspectivă, concentrată pe „vocea” interioară a pacientului care devine un observator fantomatic al propriei familii. Stilul este precis, fără a apela la artificii emoționale inutile, lăsând faptele — cum ar fi momentul în care autorul realizează că părinții săi și-au pierdut speranța — să poarte întreaga greutate a narațiunii.
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Specificații
ISBN-10: 0606367241
Pagini: 276
Dimensiuni: 137 x 208 x 25 mm
Greutate: 0.3 kg
Ediția:Bound for Schoo
Editura: Bloomsbury Publishing
De ce să citești această carte
Recomandăm această carte oricui dorește să înțeleagă reziliența spiritului uman în condiții extreme. Cititorul va câștiga o perspectivă unică asupra importanței comunicării și a pericolelor etichetării medicale. Este o lectură esențială pentru profesioniștii din domeniul sănătății, dar și pentru publicul larg, oferind un motiv concret de a prețui viața și capacitatea de a fi auzit.
Descriere scurtă
They all thought he was gone. But he was alive and trapped inside his own body for ten years.
In January 1988 Martin Pistorius, aged twelve, fell inexplicably sick. First he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within eighteen months he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.
Martin was moved to care centers for severely disabled children. The stress and heartache shook his parents' marriage and their family to the core. Their boy was gone. Or so they thought.
"Ghost Boy "is the heart-wrenching story of one boy's return to life through the power of love and faith. In these pages, readers see a parent's resilience, the consequences of misdiagnosis, abuse at the hands of cruel caretakers, and the unthinkable duration of Martin's mental alertness betrayed by his lifeless body.
We also see a life reclaimed--a business created, a new love kindled--all from a wheelchair. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for others.
Descriere
NEW YORK TIMES BESTSELLER
Martin Pistorius's miraculous journey back from life on the brink will inspire you to celebrate life and fight for those around you.
When you lose your voice, who will speak for you? When it all seems hopeless, how do you get through each day? In the New York Times bestseller Ghost Boy, Martin Pistorius tells the harrowing story of his return to life through the healing power of love and faith.
In January 1988, a happy, healthy twelve-year-old Martin Pistorius came home from school with a sore throat. Soon, he was sleeping all day, refusing meals, and starting to lose his voice.
His doctors were mystified. Within eighteen months, his voice fell silent and his developing mind became trapped inside a body he couldn't control. Martin's parents were told that the unknown degenerative disease he was struggling with would mean that he had less than two years to live. He felt invisible--like a ghost of himself.
The stress and heartache shook his family to the core, bringing his parents to the brink of separation. Their boy was gone--or so they thought. Martin started to come back to life. He couldn't make a sign or a sound, but he'd become aware of the world around him again and was finally finding his way back to himself.
In these pages, you'll hear the highs and lows of Martin's journey from his own perspective, including:
- A family's resilience in the face of hardship
- The consequences of misdiagnosis
- The gift of a wild imagination
Ghost Boy shares the beautiful, heart-wrenching story of a life reclaimed, a business created, a family transformed, and a new love that's blossomed. Martin's emergence from his own darkness invites us to celebrate our own lives and fight for a better life for those around us.
Premii
- Audies Finalist, 2016