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Genomics and Society: Ethical, Legal, Cultural and Socioeconomic Implications

Editat de Dhavendra Kumar, Ruth Chadwick
Notă GoodReads:
en Limba Engleză Carte Hardback – 16 Nov 2015
Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011.
The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system.
Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine.


  • Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011
  • Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system
  • Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more
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Specificații

ISBN-13: 9780124201958
ISBN-10: 0124201954
Pagini: 438
Ilustrații: 50
Dimensiuni: 191 x 235 x 25 mm
Greutate: 1.09 kg
Editura: ELSEVIER SCIENCE

Public țintă

Genome researchers, healthcare workers, and applied social scientists interested in bioethics, psychology, sociology, anthropology, history, philosophy, law, economics, health services research, and related disciplines

Cuprins

Foreword
Acknowledgements
1. Preface: Genomics and Society – A Visionary Approach
2. Personal Genomics and its Sociotechnical Transformations
3. Genetics, Genomics and Society: Challenges and Choices
4. Genomics and patient empowerment
5. Ethical issues in Health and Social Genomics
6. Health economic perspectives of genomics
7. Legal aspects of health applications of genomics
8. Genomics, Patents and Human Rights
9. Teaching genetics and genomics for social and lay professionals
10. Engaging and empowering public and professionals in genomics
11. The ‘life costs’ of living with rare genetic diseases
12. The bioeconomy, genomics and Society
13. Socio-economic outcomes of genomics in the developing world
14. Roles of genomics in addressing global food security
15. The integration of genomics in the traditional Indian medical practice of Ayurveda
17. Genomics and Traditional Chinese Medicine
18. Human genetics and genomics and the socio-cultural beliefs and practices in South Africa
19. Genomics and Spirituality
20. The socio-demographic and economic correlates of consanguineous marriages in highly consanguineous populations
21. The international law and regulation of medical genetics and genomics
Glossary

Recenzii

"...provides a remarkably broad overview of its [genomics'] implications in various sectors of the society, ranging from questions on how clinical genetics services may contribute to the empowerment of patients to questions about economic assessment of these genetic services and biotechnological applications." --European Journal of Human Genetics, Genomics and Society