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Designing Babies: How Technology is Changing the Ways We Create Children de Robert Klitzman

Designing Babies: How Technology is Changing the Ways We Create Children

Autor Robert Klitzman
en Limba Engleză Hardback – 12 dec 2019

Analizăm în Designing Babies o radiografie clinică a peisajului reproductiv contemporan, unde tehnologia a devansat cadrul legislativ și etic. Putem afirma că rigoarea acestei lucrări rezidă în datele empirice colectate direct din prima linie a clinicilor de fertilitate, oferind o perspectivă rară asupra modului în care pacienții și medicii navighează prin dileme morale fără precedent. Structura volumului prioritizează mărturiile directe și studiile de caz, transformând statisticile despre In Vitro (IVF) și tehnologia CRISPR în dezbateri umane fundamentale despre identitate și eugenie.

Observăm cum Robert Klitzman integrează această cercetare în parcursul său academic început cu explorări ale rezidențiatului în In a House of Dreams and Glass sau ale vulnerabilității medicale în When Doctors Become Patients. Dacă în lucrările anterioare se concentra pe psihicul medicului, aici extinde analiza către sistemul bioetic global, continuând interogațiile din The Ethics Police? despre limitele intervenției guvernamentale în știință.

Considerăm că acest volum completează Baby-Making de Bart Fauser prin adăugarea unei dimensiuni critice de bioetică și politici publice; în timp ce Fauser se concentrează pe disponibilitatea tratamentelor, Klitzman analizează costul moral al „copilului la comandă”. De asemenea, lucrarea oferă un fundament faptic pentru întrebările teoretice ridicate în From IVF to Immortality, trecând de la speculații filosofice la realitatea brută a unei piețe comerciale de ovule și embrioni. Ritmul este unul analitic, solicitând cititorului o reflecție profundă asupra modului în care selecția genetică pentru trăsături non-medicale, precum înălțimea sau culoarea ochilor, reconfigurează conceptul de familie.

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Specificații

ISBN-13: 9780190054472
ISBN-10: 0190054476
Pagini: 360
Dimensiuni: 239 x 160 x 36 mm
Greutate: 0.61 kg
Editura: Oxford University Press
Colecția OUP USA
Locul publicării:New York, United States

De ce să citești această carte

Recomandăm această carte profesioniștilor din medicină, juriștilor și viitorilor părinți care doresc să înțeleagă implicațiile profunde ale ingineriei genetice. Cititorul câștigă o viziune clară asupra riscurilor nereglementării tehnologiilor ART și CRISPR, primind un instrument esențial pentru a distinge între necesitatea medicală și dorința de „perfecționare” biologică. Este o lectură despre responsabilitatea față de generațiile viitoare.

Despre autor

Robert Klitzman este profesor de psihiatrie clinică la Universitatea Columbia, unde conduce programul de Master în Bioetică. Experiența sa vastă este marcată de o dublă perspectivă: cea de clinician și cea de cercetător al eticii medicale. Cariera sa literară și academică a fost dedicată înțelegerii experienței umane în sistemul sanitar, de la presiunile formării medicale până la impactul bolii asupra identității medicului. Prin Designing Babies, Klitzman își consolidează rolul de observator critic al modului în care inovația tehnologică forțează limitele eticii tradiționale.

Descriere

Since the first "test tube baby" was born over 40 years ago, In Vitro Fertilization and other Assisted Reproductive Technologies (ARTs) have advanced in extraordinary ways, producing millions of babies. An estimated 20% of American couples use infertility services to help them conceive, and that number is growing. Such technologies permit thousands of people, including gay and lesbian couples and single parents, to have offspring. Couples can now transmit or avoid passing on certain genes to their children, including those for chronic disease and, probably sometime soon, height and eye color as well. Prospective parents routinely choose even the sex of their future child and whether or not to have twins. The possibilities of this rapidly developing technology are astounding-especially in the United States, where the procedures are practically unregulated and a large commercial market for buying and selling human eggs is swiftly growing. New gene-editing technology, known as CRISPR, allows for even more direct manipulation of embryos' genes. As these possibilities are increasingly realized, potential parents, doctors, and policy-makers face complex and critical questions about the use-or possible misuse-of ARTs. Designing Babies confronts these questions, examining the ethical, social, and policy concerns surrounding reproductive technology. Based on in-depth interviews with providers and patients, Robert Klitzman explores how individuals and couples are facing quandaries of whether, when, and how to use ARTs. He articulates the full range of these crucial issues, from the economic pressures patients face to the moral and social challenges they encounter as they make decisions which will profoundly shape the life of their offspring. In doing so, he reveals the broader social and biological implications of controlling genetics, ultimately arguing for closer regulation of procedures which affect the lives of generations to come and the future of our species as a whole.

Recenzii

Klitzman's research will be useful for bioethicists seeking better understanding of the current state of ART and PGD.
This book offers a reminder of the potential of new technologies to help millions more still unable to create their own biological children, while pointing out the complexities and risks these developing technologies will bring. [...] a must-read for any patient considering going abroad to avoid UK regulations that may appear to curtail freedoms but in fact aim to protect patients' safety and rights, and those of any offspring born through IVF.
Professor Klitzman has created an incredibly detailed, thought-provoking book which shines a light on the dilemmas that fertility patients and medical practitioners face on a daily basis. This book will likely appeal to a wide range of individuals...
Klitzman and his interviewees lay out the real-world choices that people make — surrogacy, in vitro fertilization, preimplantation genetic testing, adoption — in practical detail. [...] Klitzman's book amply illustrates the supremely difficult choices that prospective parents can face, using their own voices, leavened with his review of relevant background facts. Klitzman's book is organized according to types of decisions facing prospective parents. It's a great title to recommend to those who are contemplating or undergoing medically assisted reproduction or using adoption.
For readers with an interest in how IVF and PGT work in clinical settings, this will be a welcome contribution...Professor Klitzman understands that as genomics and assisted reproduction develop, it will become especially important to enable poor parents to afford some of the advantages that rich parents will be able to buy.
[Klitzman's] ability to scientifically explore yet vividly personalize the perspectives of many is what makes this work an important and timely read in this rapidly evolving landscape...Anyone, from a future parent suffering from infertility and considering their options to a young woman debating whether to donate her eggs to a seasoned practitioner counseling patients and providing guidance, is sure to benefit from this read.
Well-researched and rigorous yet highly readable, this study of reproductive liberty will assist patients on their journey through the infertility maze and enlighten general readers about this ever-changing industry.
Designing Babies is brilliant, revelatory, engrossing, and wonderfully readable - exactly the sort of work one has come to expect from Dr. Klitzman. He has taken a subject of extraordinary complexity, presenting a labyrinth of excruciating scientific, moral, and practical dilemmas, and has charted a path through them that medical professionals, men and women struggling to become parents, and others will find invaluable.
In this meticulously researched and eloquent book, Robert Klitzman examines the brave new world of reproduction in the twenty-first century. He describes the relevant medical progress in accessible terms, tells the stories of individual families with warmth and compassion, and examines the ethical nuances that follow on evolving technologies. The book is written with the passion of a scientist and the subtlety of a novelist.
It takes a seasoned psychiatrist to make it plain that conjugal reproduction is giving way to a non-conjugal counterpart. It takes a seasoned ethicist to make sense of it all. The author, straddling both disciplines, lays out a tapestry unlike any other.
Reproductive technologies are radically transforming the creation of families in ways that create a host of ethical and practical questions. Klitzman takes us on a vivid tour of this new landscape and offers not only his own incisive perspectives on the moral issues, but shows how these developments affect patients and medical providers, presenting a rich tableau of their own experiences told in their own voices. This is an important and much-needed work and there is no one who could write it better.
A few years ago, a friend of Robert Klitzman asked 'Do you want to be the father of my child?' After much thought, he declined. Now, in Designing Babies, he has written a wonderfully well-informed, sensible, and sympathetic account of the brave new world of mechanical reproduction, reviewing the innumerable questions and choices that face parents and would-be parents today. Coming from one of this country's leading bioethicists, Designing Babies is as valuable as it is timely.
Klitzman delivers a well-researched book that is filled with empirical data, providing a clear picture of the current state of the field. Understanding where we are now is imperative to inform our path forward. This book is therefore an important resource for anyone who is interested in predicting where we will go from here or, even better, recommending or creating policy on where we should go from here.

Notă biografică

Robert Klitzman, MD, is a Professor of Psychiatry in the College of Physicians and Surgeons and the Joseph Mailman School of Public Health, and the Director of the Masters of Bioethics Program at Columbia University. He co-founded & for 5 years co-directed the Center for Bioethics. He has conducted research and written about a variety of bioethical issues, and has authored or co-authored over 130 peer-reviewed scientific articles, as well as nine books, including Am I My Genes?, The Ethics Police?, Mortal Secrets, Being Positive, A Year-long Night, The Trembling Mountain, and In a House of Dreams and Glass: Becoming a Psychiatrist.His work has appeared in JAMA, Science, and other scientific publications, as well as The New York Times, The Wall Street Journal, Newsweek, and The Nation. He has received several awards for his work, including fellowships from the John Simon Guggenheim Foundation, the Russell Sage Foundation, the Aaron Diamond Foundation, the Robert Wood Johnson Foundation, the Rockefeller Foundation, the Commonwealth Fund, and the Hastings Center, and is a Distinguished Fellow of the American Psychiatric Association. He has been a member of the Research Ethics Advisory Panel of the US Department of Defense, and is a gubernatorial appointee to the NY State Stem Cell Commission.