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Cerebral Palsy de Freeman Miller

Cerebral Palsy: Cerebral Palsy

Editat de Freeman Miller, Steven Bachrach, Nancy Lennon, Margaret E. O'Neil
en Limba Engleză Hardback – 4 noi 2020

În ultimele decenii, managementul paraliziei cerebrale a evoluat de la o abordare pur ortopedică spre un model de îngrijire multidisciplinar, care recunoaște natura sistemică și pe termen lung a acestei afecțiuni. Remarcăm în această a doua ediție a Cerebral Palsy o sinteză clinică riguroasă, menită să ofere specialiștilor instrumentele necesare pentru a naviga complexitatea diagnosticului și tratamentului modern. Cartea nu se rezumă la intervenția medicală imediată, ci subliniază rolul crucial al sistemului educațional și al adaptărilor sociale în atingerea potențialului maxim al pacientului.

Structura volumului reflectă o progresie logică, de la fundamentele etiologice — incluzând prematuritatea, accidentul vascular cerebral in utero și infecțiile — până la secțiuni avansate de patologie. Găsim aici detalii tehnice despre utilizarea imagisticii PET și analiza modificărilor osoase și musculare la nivel celular, elemente esențiale pentru o înțelegere profundă a neuro-motricității. Pe linia clinică a lucrării Orthopedic Care of Patients with Cerebral Palsy, dar cu un accent mult mai pronunțat pe fundamentarea științifică a patologiei și pe epidemiologia diversificată (acoperind experiențe din America, Europa, Asia și Africa), acest tratat devine o resursă enciclopedică.

Această ediție extinde viziunea autorului Freeman Miller prezentă în Physical Therapy of Cerebral Palsy, trecând de la focusul pe terapie fizică la o analiză comprehensivă a întregului spectru medical. Volumul reușește să echilibreze rigoarea academică a celor 1200 de pagini cu necesitățile practice ale clinicianului care se confruntă cu provocări precum managementul durerii la pacienții non-comunicativi sau evaluarea prognosticului prin reflexe patologice.

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Specificații

ISBN-13: 9783319745572
ISBN-10: 3319745573
Pagini: 1200
Ilustrații: L, 3145 p. 1503 illus., 914 illus. in color. In 3 volumes, not available separately.
Dimensiuni: 178 x 254 x 132 mm
Greutate: 7.35 kg
Ediția:2nd ed. 2020
Editura: Springer International Publishing
Colecția Springer
Seria Cerebral Palsy

Locul publicării:Cham, Switzerland

De ce să citești această carte

Această lucrare este esențială pentru neurologi pediatri, ortopezi și terapeuți care doresc o înțelegere profundă, bazată pe dovezi, a paraliziei cerebrale. Cititorul câștigă acces la protocoale actualizate de diagnostic și la o perspectivă globală asupra epidemiologiei bolii. Este un instrument de referință care transformă abordarea clinică fragmentată într-un management integrat, axat pe calitatea vieții pacientului și a familiei acestuia pe parcursul întregii existențe.

Despre autor

Dr. Freeman Miller este un expert recunoscut la nivel internațional în tratamentul copiilor cu paralizie cerebrală și tulburări ale mersului. În calitate de Co-Director al Programului de Paralizie Cerebrală și Director Medical al Laboratorului de Analiză a Mersului din cadrul Institutului Alfred I. duPont din Delaware, Dr. Miller a contribuit fundamental la standardizarea protocoalelor de intervenție. Membru activ în organizații de prestigiu precum Academia Americană de Pediatrie, acesta și-a dedicat cariera cercetării clinice, fiind autorul unor lucrări de referință care îmbină ortopedia cu neurologia și terapia recuperatorie.

Descriere scurtă

Dr. Miller’s valuable resource helps members of the medical team navigate the complexity of cerebral palsy care by explaining unfamiliar treatments that fall outside of their own disciplines.
Readers also benefit from a review of current practices in their own fields.
Includes recommended treatment algorithms and is designed to help improve decision making.
Written in a very conversational style and illustrated with lots of color the volume provides rehabilitational (part 1) and surgical aspects (part 2).
Accomplished by a CD-ROM which provides lots of case studies - including walking analysis.
The most comprehensive title on this topic written by a leading expert.

Descriere

Cerebral palsy is a lifelong condition that affects the individual, family, and immediate community. Therefore, the goal of allowing the individual with cerebral palsy to live life with the least impact of the disability requires c- plex attention to the individual and the family. Furthermore, society needs to be sensitive and to accommodate individuals with disabilities by limiting architectural impediments and providing accessible public transportation and communication. The educational system provides the key means for helping the individual prepare to function in society to his or her maximum ability. In many ways, the medical care system probably has the least sign- icant role in preparing the child with cerebral palsy to function optimally in society. However, the medical care system is the place where parents first learn that their child has developmental issues outside the expected norm. It is almost universally the place where parents also expect the child to be made normal in our modern society. In earlier times, the parents would expect healing to possibly come from the doctor, but also they would place hope for healing in religion. As this belief in spiritual or miraculous healing has - creased, a significant font of hope has decreased for parents of young ch- dren with disabilities.

Cuprins

Section 1  Etiology
 
The Child, The Parent and the Goal
Prematurity
Congenital malformation
Infections
Congenital Metabolic
In utero Stroke
Problem during delivery
Post natal encephalopathy
 
Section 2 Epidemiology
 
Over-view of the past 50 Years
American experience
European Experience
Asian experience
African experience
 
Section 3 Pathology
 
Physical pathology
Current Imaging -PET
Muscle changes at the cellular level
Gross Anatomic Muscle changes in CP
Neuro-motor junction changes
Bone Alterations in CP
 
Section 4 Diagnosis
 
Over view of when and how to evaluate
Who should get Imaging
Indications for metabolic work up
Indications for full genetic work up Prognosis assessment - role of PE -Pathologic Reflexes
Classification Terminology
 
Section 5 General Medical Concerns
 
Over view of Normal Natural history
The Irritable Child with CP
Pain in The Non-communicative Patient
Post-operative Pain Management
 
Section 6 Neurologic Problems
 
Seizures - Diagnosis, Natural History
Seizures - Medical Management
Seizures - Ketogenic Diet - Indication and Description
Seizures - Role of VNS
Seizures - Role of Surgical Removal
Seizure Surgery - Workup and technique Description
Pseudo-seizures - Diagnosis and Treatment
Hydrocephalus Diagnosis and treatment indications
Shunting for Hydrocephalus
Surgical Ventriculostomy for Hydrocephalus
 
Section 7 Psychologic and Psychiatric Problems
 
Attention Deficient associated with CP
Autism and CP as Comorbidities
Family Stress Secondary to Disability Impact on Siblings
Depression associated with CP
Mood disorders (Bipolar and CP)
Thought disorder and CP
 
Section 8 Gastro-intestinal Problems
 
Over view and natural of feeding issues with growth and development
Aspiration - risks, work up, when is it a problem
Gastrostomy feeding - when indicated
Tracheostomy or diversion - When indicated and how done
Weight and growth in the child with CP
Feeding Therapy - Indications how long (Maybe in therapy section) GE reflux - Work up and medical Management
GE Reflux - Work up and Surgical Management
Poor Intestinal Motility
Constipation - Implications long term and treatment
 
Section 9 Genito-Urinary
 
Toilet training and bladder control - Expectations and when to work up
Neurogenic Bladder
Renal stones - risks, prevention and management
Undescended Testicles -
 
Section 10 Ear Nose and Throat
  Drooling - diagnosis, measurement and medical management
Drooling - management with local injections - Botulinum
Drooling - Surgical treatment options and outcomes
Hearing Evaluation - When and How
Cochlear Implant Indication and role in CP
Upper Airway Obstruction - Indication for adenoid and tonsillectomy
 
Section 11 Pulmonary
 
Bronchopulmonary Dysplasia - Natural History, etiology and outcome
Bronchopulmonary Dysplasia - Medical management
Reactive airways - Chronic aspiration
Airway obstruction - Work up and medical management
Airway obstruction - Indication and options for surgical management
 
Section 12 Endocrine
 
Pitutary-hypohoseal dysfunction
Adrenal insufficency
Short Stature - Work up and treatment indications
Pillow angel treatment - indication ethics approach
Glucose intolerance due to intramuscular fat
Premature or Delayed Sexual Maturation
 
Section 13 Eyes
 
Testing Sight - how when and the outcome Strabismus
Cortical blindness
 
Section 14 Dental
 
Routine hygiene, When and how for child with CP
Dental Caries - When to treat, how often to check outcome
Gum Hypertrophy - etiology, and management and outcome
Malignments - when to treat and expected outcome
Bruxism - Management and long term outcome
Lip biting - Management and long term outcome
 
Section 15 Neuromuscular Function
  Neurologic Control of the Muscluosketal System
Muscle tone - Spasticity - Assessment
Movement disorders - Description and assessment
Medical Management of Spasticity
Medical Management of Movement disorders
Local treatment - Botulinum, Phenol, Neurectomy
Inthrathecal Baclofen Therapy
Dorsal Rhizotomy
Deep Brain Stimulation
Ataxia - Disorder of Balance, Description and Assessment
Assessing dynamic Balance
 
Section 16 Gait in CP
  Normal Gait
Overview and Natural history of CP Gait
Use of Diagnostic Gait Analysis to Guide Treatment
Using Gait Analysis as an Outcome Assessment
Managing Hemiplegic Gait
Diplegic Gait
Torsional Malignments
Stance phase - Crouch and Back Kneeing
Swing Phase - Toe drag
Gait with Movement Disorders
Gait in Ataxia
Complications of Gait Management and Gait Analysis
 
Section 17 Upper Extremity
<  Overview of Natural History and Outcome
Assessment of the Upper Extremity for Diagnostic Assessment
Assessment of the Upper Extremity for Outcome Evaluation
Tone Management - Botulinum, Neurectomy, Rhizotomy
Single Event Multi-level Surgery Approach
Shoulder
Elbow
Forearm and Wrist
Thumb
Fingers
 
Section 18 Spine
 
Overview and Natural History
Non-operative Management of CP scoliosis Surgical Planning - Medical Evaluation Pre-op
Role and Response to Spinal Cord Monitoring
Anesthesia for CP Spinal Fusion
Surgical Management of Scoliosis (operative Procedure)
Surgical Management of Kyphosis and Lordosis
Post-operative Management
Managing Early Onset Scoliosis in CP
Managing Complications related to Spinal Fusion
Cervical Spinal Problems in CP
Lumbar Spondolethesis
Ambulatory child CP and Scoliosis
Scoliosis and Hip dislocation - Management considerations
 
Section 19 Hip
 
Summary Overview
Etiology and Natural History
Screening and Surveillance
Prophalactic Treatment
Reconstruction of Common Posterior Lateral Displacement
Reconstruction of the Atypical- Anterior or Inferior Displacement
Palliative or Salvage Treatment
Complications of CP hip Management
 
Section 20 Knee
 
Summary of Knee problems
Patella-femoral instability Apophositis and stress fractures
Rotatory or torsion Instability
Fixed knee flexion Contracture
Hyper-extension knee deformity
Knee extension Contracture and Stiff Knee Gait
Tibial Torsion and Bowing
 
Section 21 Ankle, Foot, and Toes
 
Over view of the FOOT in CP
Natural History of Foot posture in Children with CP
Equinus
Ankle Varus and Valgus
Planovalgus
Varus
Calcaneovalgus
Hallux
Claw toes, Over Lap, and Crossing Toes
Toe Nail Problems
Complications of Managing Foot Problems
 
Section 22 Physical Therapy
 
Over view and history of therapy for CP
Early Intervention - techniques and outcome
Habilation therapy - in middle childhood - role and outcome
Short High Intensity VS Long-term Low frequency
Rehabilitation Therapy -(Post op) Frequency and Approach
Role of Therapy in Teenagers to prevent function loss Educational Therapy - Technique outcome, how not medical therapy
Therapy Theories - NDT ECT outcome expectations
Hydrotherapy
Strength Training
Cardiovascular Endurance training
Hippotherapy
Robotic training, Suspended Treadmill training
 
Section 23 Occupational Therapy
 
Over view theories and expectations
Early intervention expectations and outcome
UE Habilation techniques - Outcomes
Constrained use - Enforced use Therapy Techniques and expected outcome UE splinting VS use encouragement
Evaluation for Driver Training and adaptations
 
Section 24 Speech Therapy
 
Over view of ST and expect outcome
Feeding Therapy Indications, techniques, outcome
Speech therapy, When techniques and expected outcome.
Augmentative communication, When and expected outcome how to evaluate
Training oral control for Drooling - Techniques and outcome
 
Section 25 Augmentative and Complimentary Therapies
  Over view of the wide range
Swimming with Dolphins
Hyperbaric Oxygen
Acupuncture
Pressure suits and vests
Elastic Space suits
Votja Technique
ECT ECT ECT
 
Section 26 Durable Medical Equipment
 
Standers - Which, when how long, who and what is the benefit
Reclining - Side Lyers, wedges, beds - Benefit for who and when
Gait trainers - Who when how long - Benefit
Walkers - WHO WHEN how long and what is the benefit Crutches, and canes and sticks -
UE - Self feeders - WHO W WH outcome
 
Section 27 Wheel Chairs
 
General Over view of issues to be considered
Wheel chair VS stroller - difference and why and when and outcome
Power Wheel chair - WHEN WHO outcome
Early power wheeled toy mobility - Benefit outcome
Consideration of the appropriate WHEEL chair for permanent use
One arm drive chair for who and when
 
Section 28 Orthotics  
General Overview when indicated benefits and risks
Control Foot posture - Arch supports, UCBL and SMO
Ankle control
Knee control options
Hip control
UE orthotics

Notă biografică

Dr. Freeman Miller was Co-director of the Cerebral Palsy Program and the Clinical Director of the Gait Analysis Laboratory at the Alfred I. duPont Hospital for Children for 30 years. He continues as an emeritus staff member at Alfred I. duPont Hospital for Children providing consultative services and is active in the research program. His clinical practice of pediatric orthopedics is limited to children with cerebral palsy. For the past 25 years, Dr. Miller has held Adjunct Professor appointments in the Departments of Mechanical Engineering and Physical Education at the University of Delaware. He is also a member of the University BIOMS program, which is an interdisciplinary graduate program in biomedical engineering. Current and past research interests include investigation of surgical outcomes of CP surgery through gait analysis, mathematical modeling of the hip joint in children with CP, hip monitoring and management for children with CP, and management of spinal deformity in CP.
Dr. Miller has published approximately 200 articles in peer-reviewed journals. He has been invited to give many lectures in over 35 different countries. As a coauthor with Dr. Bachrach, he published a book Cerebral Palsy: A Guide for Caregiving directed at families and nonmedical care providers, which was published in 1995, second edition in 2006, and in 2017 was revised and released as the third edition. A medical textbook, Cerebral Palsy, with 1080 pages outlining musculoskeletal care of the child with cerebral palsy, was written by Dr. Miller and published in 2005 by Springer-Verlag

Dr. Steven Bachrach was Co-director of the Cerebral Palsy Program and Chief of the Division of General Pediatrics at the Nemours/Alfred I. duPont Hospital for Children in Wilmington, DE, for nearly 30 years. He is Board Certified in Pediatrics and Neuro-developmental Disabilities, and his clinical practice encompassed both general pediatrics and the care of children with developmental disabilities. He continues as an emeritus staff member at Alfred I. duPont Hospital for Children, primarily involved in educational and research efforts. Dr. Bachrach also served for 20 years as Medical Director of the HMS School for Children with Cerebral Palsy in Philadelphia, PA, and currently serves on their Board of Directors. He is also a consultant to the Alyn Hospital in Jerusalem, Israel.
Dr. Bachrach has a faculty appointment as Professor of Pediatrics, Clinical and Educational Scholarship Track, at the Sidney Kimmel Medical College of Thomas Jefferson University. He has been a member of the American Academy of Cerebral Palsy and Developmental Medicine for over 35 years and has often been a presenter at their annual meetings. His research focus has been on children with cerebral palsy, and especially the evaluation and treatment of osteoporosis in children who are non-ambulatory.
ren who are non-ambulatory. Dr. Bachrach has published over 30 articles in peer-reviewed journals, as well as a number of book chapters and abstracts. As a coauthor with Dr. Miller, he published the book Cerebral Palsy: A Guide for Caregiving, which was aimed at a lay audience and published by Johns Hopkins Press in 1995, second edition in 2006, and the third edition in 2017.
Dr. Bachrach has been married for 46 years and has 4 children and 14 grandchildren, all of whom he enjoys spending time with.

Ms. Nancy Lennon a physical therapist, is the manager of the Cerebral Palsy (CP) Program at the Nemours/Alfred I. duPont Hospital for Children in Wilmington, Delaware, where she works with Dr. Miller and Dr. Bachrach. She has many years of experience in the Gait Analysis Laboratory and in Nemours Biomedical Research, where she collaborates with Dr. O ’Neil. Ms. Lennon has a Bachelor of Science degree in physical therapy from the University of Delaware and a Master of Science degree from Hahnemann University. She has 30 years of clinical experience in working with children and families affected by cerebral palsy, 15 years of experience conducting clinical research, and 5 years of experience coordinating family engagement and advisory activities at the hospital.

Margaret E. O ’Neil is a Professor in the Programs in Physical Therapy, Department of Rehabilitation and Regenerative Medicine at Columbia University, Vagelos College of Physicians and Surgeons. She conducts research, advises graduate students, and teaches content in pediatric physical therapy and research. She has received grant funding from several federal and professional organizations. In her research, she examines objective measures of physical activity for youth with cerebral palsy and effectiveness of activity-based interventions (including active video games and virtual reality) to promote fitness and activity. She collaborates with an interprofessional team to conduct her research and they have published widely on these topics.
She co-teaches clinical workshops on measurement and intervention strategies to promote strength and fitness in children with disabilities. She serves as a grant reviewer for multiple agencies and is a member of the APTA and AACPDM where she serves on multiple committees.

Caracteristici

Details pathology and impact on the musculoskeletal system
Covers research, therapy and patient management techniques
Explores medical management of children with the disability
Includes supplementary material: sn.pub/extras