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Becoming Advocate: Disability and Chronicity through the Ethnographic Lens, cartea 1

Autor Maria Concetta Lo Bosco
en Limba Engleză Hardback – 15 oct 2026
Tracing the emergence of autism in Portugal, from its early recognition in child psychiatry to the rise of parent-led advocacy and digital activism, this book examines how families confront inadequate services, challenge outdated paradigms and advocate for educational and social reforms. Drawing on ethnography and critical analysis, it defines advocacy as a transformative practice that reshapes parents' identities and links care with politics, showing how digital infrastructures become a force for collectivising in the absence of state support, revealing the intertwined socio-institutional and affective dimensions of care and civic engagement in Portugal. It explores how autistic subjectivities challenge normative notions of personhood and citizenship.
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Specificații

ISBN-13: 9781807580551
ISBN-10: 1807580555
Pagini: 216
Dimensiuni: 157 x 235 x 16 mm
Greutate: 0.42 kg
Editura: BERGHAHN BOOKS
Colecția Disability and Chronicity through the Ethnographic Lens
Seria Disability and Chronicity through the Ethnographic Lens


Notă biografică

Maria Concetta Lo Bosco is a Research Fellow at the Institute of Social Sciences, University of Lisbon. She has published on autism advocacy, mothering practices, gendered care labour and the emotional dimensions of ethnographic fieldwork.