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Living Well with Dystonia: A Patient Guide

Autor Daniel Troung, Mayank Pathak, Karen Frei
en Limba Engleză Paperback – mar 2010

Comprehensive information for patients with dystonia and the people close to them.

You can live well with dystonia. This empowering and encouraging resource and tool, written for both individuals with chronic condition and their families, provides an overview of a variety of dystonias, (including cervical dystonia, spasmodic dysphonia, and writerIs cramp) and the breadth of treatment options available, as well as practical advice for improving quality of life.

Written by three acclaimed neurologists, "Living Well with Dystonia" will help you:

Understand your specific dystonia and how it progresses Determine the best treatment approaches Alleviate symptoms with rehabilitation exercises Address the Ihidden symptomsO such as social embarrassment

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Specificații

ISBN-13: 9781932603231
ISBN-10: 1932603239
Pagini: 163
Ilustrații: figures
Dimensiuni: 150 x 226 x 18 mm
Greutate: 0.25 kg
Editura: Demos Health
Locul publicării:United States

Recenzii

""Living Well with Dystonia" provides a balanced and easily understandable introduction to a chronic condition that is rarely discussed. Treatments and exercises are presented honestly - no miracle cures, but paths toward symptom relief. Simple diagrams of the nervous system and affected limbs or muscles are very helpful, and comments from actual patients personalize the discussions throughout. Well written. Recommended." - CAPHIS Consumer Connections
"This book is a life-altering experience, easy to comprehend, the pictures of the disorder give you a clear insight."-Robert Farmer, Former President, National Spasmodic Torticollis Association
"This kind of comprehensive guide to dystonia has long been needed. It will be an invaluable resource to patients, their families and caregivers."-Bonnie Strauss, President and Founder, The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc.
""Living Well with Dystonia" is an extraordinary resource written by an extraordinary man. Dr. Daniel Truong has dedicated his professional life to the Dystonia community and we have been blessed by his dedication. Without his leadership, inspiration, financial and professional help there probably would not be a National Spasmodic Dysphonia Association."- Larry Kolasa, Co-Founder/Past President, National Spasmodic Dysphonia Association
"Dr. Daniel Truong and co-authors have done a great service to patients with blepharospasm and other forms of dystonia by providing a clear and readable discussion of the disorders, their causes and therapeutic alternatives. Ignorance enhances fear and disability, whereas knowledge allows patients and their families to optimally adjust to chronic conditions, thereby improving their quality of life. This book should be read by all dystonia suffers and their loved ones."-Mary Lou Koster Thompson, President, Benign Essential Blepharospasm Research Foundation--Mary Lou Koster Thompson"President, Benign Essential Blepharospasm Research Foundation"

Descriere

For the 85,000 people in the United States affected with cervical dystonia, information about the condition is hard to obtain. This comprehensive guide is for individuals with various forms of dystonia who don’t want the disorder to define them. Written by three neurologists who specialize in movement disorders, it covers diagnosis and treatment, rehabilitation exercises, and patient resources. Personal vignettes guide readers through the onset and progression of the disorder and help them make informed decisions about their medical care, diagnosis, and treatment.