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In a Different Key

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en Limba Engleză Carte Paperback – 19 Jan 2016
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An extraordinary narrative history of autism: the riveting story of parents fighting for their children 's civil rights; of doctors struggling to define autism; of ingenuity, self-advocacy, and profound social change
Nearly seventy-five years ago, Donald Triplett of Forest, Mississippi, became the first child diagnosed with autism. Beginning with his family's odyssey, In a Different Key tells the extraordinary story of this often misunderstood condition, and of the civil rights battles waged by the families of those who have it. Unfolding over decades, it is a beautifully rendered history of ordinary people determined to secure a place in the world for those with autism--by liberating children from dank institutions, campaigning for their right to go to school, challenging expert opinion on what it means to have autism, and persuading society to accept those who are different.
It is the story of women like Ruth Sullivan, who rebelled against a medical establishment that blamed cold and rejecting "refrigerator mothers" for causing autism; and of fathers who pushed scientists to dig harder for treatments. Many others played starring roles too: doctors like Leo Kanner, who pioneered our understanding of autism; lawyers like Tom Gilhool, who took the families' battle for education to the courtroom; scientists who sparred over how to treat autism; and those with autism, like Temple Grandin, Alex Plank, and Ari Ne'eman, who explained their inner worlds and championed the philosophy of neurodiversity.
This is also a story of fierce controversies--from the question of whether there is truly an autism "epidemic," and whether vaccines played a part in it; to scandals involving "facilitated communication," one of many treatments that have proved to be blind alleys; to stark disagreements about whether scientists should pursue a cure for autism. There are dark turns too: we learn about experimenters feeding LSD to children with autism, or shocking them with electricity to change their behavior; and the authors reveal compelling evidence that Hans Asperger, discoverer of the syndrome named after him, participated in the Nazi program that consigned disabled children to death.
By turns intimate and panoramic, In a Different Key takes us on a journey from an era when families were shamed and children were condemned to institutions to one in which a cadre of people with autism push not simply for inclusion, but for a new understanding of autism: as difference rather than disability.
-- Washington Post, Notable Non-fiction Books in 2016
-- WBUR, Best Books of 2016
-- Wall Street Journal, Best Books of the Year
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Specificații

ISBN-13: 9780804189385
ISBN-10: 0804189382
Pagini: 688
Dimensiuni: 156 x 233 x 53 mm
Greutate: 0.86 kg
Editura: Random House
Colecția Crown Books

Notă biografică

John Donvan (Author)
John Donvan is a multiple Emmy Award-winning Nightline correspondent with a long career in journalism. Prior to Nightline, he was the chief White House correspondent for ABC News.

Caren Zucker (Author)
Caren Zucker is an award-winning veteran television news producer who has worked most extensively with ABC News. She also produced and cowrote a six-part series on autism for PBS in 2011.


Recenzii

In a Different Key is almost as much a history of coping with ignorance and uncertainty as it is a voyage of discovery. But even ignorance can be good or bad. And so we have, at least, evolved from locking away people who seem impossibly different to beginning to talk about their different mental wiring with something approaching respect. It is the great achievement of this book to show how this happened in an exciting and poignant way
John Donvan and Caren Zucker manage to remain objective and compassionate throughout... a history book with a compelling narrative
Interesting and engaging
In a Different Key is grounded and sensible, which in the contentious world of autism activism constitutes a kind of grace
This is not a how-to guide or a polemic on neurodiversity. The book probes a difficult subject with intelligence and compassion - and makes you think. The complete absence of hysteria will make it essential reading for many... its insights and quiet wisdom demand our attention, and gratitude
Remarkable... In a Different Key: The Story of Autism tells a riveting tale about how a seemingly rare childhood disorder became a salient fixture in our cultural landscape. It features vivid portraits of people with autism and their devoted parents and recounts dramatic controversies among well-intentioned and occasionally misguided advocates and doctors who have tried to help those with the condition. These gripping personal stories give the book tremendous narrative drive
Fast-paced and far-reaching... this is an important missing piece to the conversation about autism; no one trying to make sense of the spectrum should do so without reading this book
Donvan and Zucker's generous yet sharp-eyed portraits of men, women, and children - most of them unknown until now - make it stunningly clear that we all have a stake in the story of autism. We come to understand that we are all wired differently, and that how we treat those who are different than most is a telling measure of who we truly are. This is the kind of history that not only informs but enlarges the spirit
Donvan and Zucker have taken on a monumental task: to write a comprehensive history of autism. They delve deep into both the science and the politics of autism across time. They tell the story of the extreme treatments that have been tried, such as administering LSD or electric shocks in the 60s, to 'normalize' these children. They uncover the tragic 'mercy killing' of a teenager with autism by his father, and explore the MMR vaccine-causes-autism theory, named by TIME magazine as top of the list of 'great science frauds'. This book will make a remarkable contribution to the history of autism
Sweeping in scope but with intimate personal stories, this is a deeply moving book about the history, science, and human drama of autism. It's also something larger: a fascinating exploration of a social movement that grappled with the mysteries of mind, behaviour, and the relationship between parents and children
In a Different Key transports the reader back to the earlier days of autism. It is essential reading for anyone who is interested in how society treats those who are different
Autism is a shape changer that has continuously resisted being pinned down. This meticulously researched book leads us deeply into the history of autism and brings to life the colourful personalities and conflicting ideas that deepen the fascination of autism