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Epilepsy and Intellectual Disabilities

Editat de Vee P. Prasher, Mike Kerr
en Limba Engleză Paperback – 10 sep 2008
Like many people with epilepsy and ID, John has comorbid behavior problems. This association is dealt with in detail later in the book. A clear and consistent approach to this is likely to offer much to John in terms of his quality of life. Other psychosocial concerns will need addressing. Emphasizing and explaining the impact of epilepsy and its treatment on John’s cognitive well-being can help reduce anxiety in caregivers and the family and help establish the importance of treatment. Informing people about the negative impact of seizures while trying to minimize the difficulties in social life imposed by people’s fears of seizures can be a difficult challenge. This is most difficult when discussing seizure-related death. However, our position must be to inform patients and families so they can make their life and treatment choices with complete understanding of choices and risks. Delivering a Package of Care Delivering continuity of health care will be a major need throughout John’s lifespan. This continuity should cover seizure assessment and management yet also be responsive to changes in the care environment. A person with ID who is no longer resident in the family home is likely to undergo many changes in staffing over a lifetime. As for many people, their ability to communicate their health needs will be compromised, and these changes in staff can offer considerable risks in chronic disease management.
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Specificații

ISBN-13: 9781848002586
ISBN-10: 1848002580
Pagini: 192
Ilustrații: 41 schwarz-weiße und 8 farbige Abbildungen, 24 schwarz-weiße und 8 farbige Fotos, 2 schwarz-weiße Zeichnungen, 15 schwarz-weiße Tabellen
Dimensiuni: 155 x 235 x 11 mm
Greutate: 0.42 kg
Ediția:2008
Editura: SPRINGER LONDON
Colecția Springer
Locul publicării:London, United Kingdom

Public țintă

Professional/practitioner

Descriere

Like many people with epilepsy and ID, John has comorbid behavior problems. This association is dealt with in detail later in the book. A clear and consistent approach to this is likely to offer much to John in terms of his quality of life. Other psychosocial concerns will need addressing. Emphasizing and explaining the impact of epilepsy and its treatment on John’s cognitive well-being can help reduce anxiety in caregivers and the family and help establish the importance of treatment. Informing people about the negative impact of seizures while trying to minimize the difficulties in social life imposed by people’s fears of seizures can be a difficult challenge. This is most difficult when discussing seizure-related death. However, our position must be to inform patients and families so they can make their life and treatment choices with complete understanding of choices and risks. Delivering a Package of Care Delivering continuity of health care will be a major need throughout John’s lifespan. This continuity should cover seizure assessment and management yet also be responsive to changes in the care environment. A person with ID who is no longer resident in the family home is likely to undergo many changes in staffing over a lifetime. As for many people, their ability to communicate their health needs will be compromised, and these changes in staff can offer considerable risks in chronic disease management.

Cuprins

Clinical Issues.- Epilepsy: A General Overview.- Epidemiology of Epilepsy in Persons with Intellectual Disabilities.- Diagnosis of Epilepsy in Persons with Intellectual Disabilities.- The Differential Diagnosis of Epilepsy.- Treatment Issues.- Management of Acute Seizures in Persons with Intellectual Disabilities.- The Use of Antiepileptic Medication in Adults with Intellectual Disabilities.- Vagus Nerve Stimulation Therapy: An Intellectual Disabilities Perspective.- Resective Surgery for Patients with Epilepsy and Intellectual Disabilities.- Psychosocial Issues.- Psychopathology in People with Epilepsy and Intellectual Disabilities.- Associated Physical Problems of Epilepsy in Intellectual Disabilities.- Epilepsy and Cognition.- Nursing and Community Aspects of Epilepsy in Intellectual Disabilities.- Epilogue – Is This as Good as it Gets?.

Recenzii

From the reviews:
"This book takes a unique perspective by focusing on patients with intellectual disabilities who develop epilepsy. ... Physicians and residents in neurology and pediatrics will find this of interest, as will other practitioners working with this population, such as neuropsychologists. ... There are plenty of current references and a reasonable index. This is a concise and highly readable book on epilepsy in patients with intellectual disabilities." (Christopher J. Graver, Doody's Review Service, December, 2008)

Textul de pe ultima copertă

Epilepsy and Intellectual Disabilities brings together findings from research and clinical practice, with comprehensive coverage of the important aspects of epilepsy in persons with intellectual disabilities. It is crucial for professionals involved in the care of persons with all intellectual disabilities to have a broad understanding of the essential range of issues, and therefore this book provides a truly multi-disciplinary perspective, complete with many figures and illustrations to underline the key points.
Undoubtedly, research and clinical practice is much more advanced in the general population than in persons with intellectual disabilities, and so it is important that professionals and academics in the field of intellectual disabilities are made fully aware of ongoing developments in the general population, which will more likely than not become relevant to the intellectually disabled population. Through experience, this book also acknowledges that the impact on the person themselves and on their carers always needs to be taken into account, with treatment programs established with a multi-faceted team approach in mind.
Avoiding the jargon of many titles in this area while maintaining the hands-on approach of clinical practice, this book meshes the practical and scientific worlds, with all chapters written by leading experts in the field.
 

Notă biografică

Vee Prasher is a NHS Consultant in Intellectual Disabilities and visiting Professor of Neuropsychiatry. He qualified in 1985 from the University of Birmingham UK as a Medical Doctor. He initially did neurosurgery training, later general psychiatry, and finally specialised in the field of intellectual disability. He has been actively involved in research in intellectual disability, having published over 100 articles relating to people with intellectual disability. He has completed 3 post doctorate degrees in this field, MMedSc, MD, and PhD. As an editor or author he has published 10 textbooks. He has a recognised international reputation and has been involved in a number of international studies and reports highlighting health issues for persons with intellectual disability.
 
Professor Mike Kerr studied medicine in Bristol (UK), General Practice in York and Psychiatry in Cardiff. He came to Wales in 1990. His clinical practice is in the epilepsies associated with learning disability and in the assessment and treatment of epilepsy and psychiatric disorder. He has been closely associated with initiatives in improving the public health of people with an intellectual disability including developing the Cardiff Health Check, which is used across England and Wales.
Academically he has published widely on healthcare, epilepsy and intellectual disability and held research grants from many funding bodies. He is chair of the Advisory Board for Wales of Epilepsy Action, a trustee of Epilepsy Research UK and SUDEP ACTION. He is a medical advisor for the Rett Society, The Down Syndrome Association and SUDEP ACTION. He is a member of the International League Against Epilepsy (ILAE) commission on neuropsychiatric aspects of epilepsy and an editor of the Cochrane collaboration epilepsy group. He has been appointed as a clinical Champion for Wales. He has also been appointed as an Ambassador for Epilepsy by the ILAE and International Bureau for Epilepsy.

Caracteristici

Promotes better clinical management of epilepsy in persons with intellectual disabilities
Provides an understanding of medical, psychological and social sequelae of epilepsy
Includes relevant updates from the last ten years
Written and edited by international, multidisciplinary experts working in this field